Sunday, September 19, 2010
Today has been a turn-around day. I love turn-around days.
Chores were extremely dragged out (literally all afternoon puttering with dishwashing that was started yesterday and is still not complete; we truly do not have THAT many dishes!) BUT the stairs and the front entrance floor are clean and the "on strike" phase is over. Hooray!!
Chef planned and made his lunches for the week (homemade potato patties with onions,tofu,hot chillis; sliced cucumbers; rice crackers; apple), ate two snacks, and ate two meals! There were no inappropriate verbal expressions, no inappropriate physical communications, and no disrespecting of boundaries. There were a lot of "yes, Mom" responses to reminders of what was needed to be done, and there were independently-initiated, appropriate strategies used as well.
We also spent some time talking about tomorrow. Given the weekend we've had following the first week of school and the reports of Chef's choices while not being presently able to have the supports that work best for him, I believe it is in everyone's best interest that we take a one-day-at-a-time approach to Chef being at home for the time being until the school hears back from the division regarding the requested emergency funding for full support for Chef. I talked with Chef about it this evening and we've made some plans for tomorrow. (I also called his bus driver who told me that Chef had told him he only got up a couple minutes before the bus on Thursday which was why he was getting dressed on the front step when the bus arrived. I let the bus driver know that Chef has 50 minutes to get ready every morning (including last Thursday) and has the opportunity to earn extra time by using the 50 minutes appropriately. While on the phone with the driver, I informed Chef that the driver was telling me what Chef had told him. After the call, I talked with Chef again about the importance of honesty and about his goal of what type of person he wanted to be and how he wants people to think well of him. We then talked about tomorrow's plan.) He'd like to do some WWI research online, and I'll also direct him towards some food-related research along with a related activity. We'll take the camera along and do a fall nature walk. Chef also said he wants to get back into learning how to draw and paint. Very cool. I hope he isn't just saying that because he thinks I'd like to hear that - though that wouldn't be the worst thing in the world either.
This blog was initially set up as a means of communicating with my son's team. Since then, I've heard from other parents with similar stories. If you are living with challenges or journeying alongside someone who is, you are not alone. There are many of us. I'm a single adoptive Mom (http://richesofsimplicity.blogspot.com/) of a young man who lives with many abilities and many diagnoses. We have journeyed together through many challenges and a few adventures over the years as my son has tried to find space in this world that makes him feel more comfortable, an attempt made especially difficult when living with Attachment Disorder, PDD-NOS (Autism), Developmental Coordination Disorder, ADHD, prenatal substance exposure, etc. Some of the strongest elements used in this journey have been music, visual arts, therapeutic parenting, team-connection, boundary-setting, boundary-setting, boundary-setting, communication skills, community-building, continual lifeskills training, and elements of Theraplay. (Click here for some written resources.) On this journey, there is laughter and tears and growth and hope. The greatest of these is hope.