Today is Chef's official last day of Grade 10.
It's also party day at school and a festival weekend where we live. Both of these could cause the next few days to go either way, but I think I remember Chef enjoying last years town festival so hopefully that and the school party will help in getting Chef past the upcoming exam week.
Chef has been quite quiet the last few days other than regular comments about his EA going to Africa, exam week coming up, and how cool all the video games are at school. He's been wearing his bathrobe inside-out all week, even with reminders, and it is already showing signs of wear and tear even though he's only been using it a week or two. Hygiene prompts have fallen on deaf ears, and the same outfit has been worn for a week. Chef seems more tired than usual and has been sneezing.
When I asked him what he was looking forward to most about summer holidays, he first shrugged and said he didn't know. When reminded to take some time to think about the question before answering, he paused then said, "The quiet." When I asked him for more details, he said he was looking forward to not having to hear noise all day at school.
With Chef's recent interest in reading books about Autism (after watching the Temple Grandin and RainMan movies), I'm hoping his interest will continue through summer. We have tons of books in our house (though I'm trying to minimize!), including many on the medieval era (another area of interest for Chef, though he's recently developed more of an interest in greek mythology), nature, trivial facts, and various diagnoses, etc. Chef's an avid reader, but he didn't do much reading at all last summer (possibly due to my offer to pay him money for any 2 or 3 page book reports he would do on books he'd read). I'm also hoping he'll go back to strumming/experimenting on the guitar - something he was willingly doing outside last year til neighbourhood kids asked him why he was doing that. We'll try some visual art again this summer, probably focusing on watercolours since he did a cool watercolour piece before Christmas. We also have our deck plants and a plot in the community garden, and Chef's usually-eagerly-embraced role is to look for good shots when we go on photography walks.
There is a family who has signed on to do once-a-month weekend respite, but nothing's happened with that since the first weekend Chef went there at the end of April, and we haven't heard from them nor have they returned calls from Chef's worker. My married daughter and her husband usually provide 4 hours of evening respite every other week, but they will be moving to another town in summer. Finding respite providers has always been a challenge. When I worked with Community Living, there were some staff who would have been great with/for Chef, but they weren't interested in taking on respite in addition to their shifts. I'm so very thankful for the respite funding that is in place - hopefully we'll be able to find providers to match.
Showing posts with label support. Show all posts
Showing posts with label support. Show all posts
Friday, June 17, 2011
Friday, December 10, 2010
December 10, 2010
We have had a fairly peaceful week at home. Chores and "attitude" are being addressed even more firmly than before - and it's "working." The degree to which Chef must miss out on things/events/comfort, etc., before it matters to him enough to make a difference is pretty incredible.
Chef is presently missing out on his free time in the evenings because free time comes after chores and responsibilities have been taken care of. Chef has chosen not to put his laundry in for the past couple of weeks, and most of his clothes have once again "disappeared." The clothing piece truly is a mystery at this point, since Chef almost always has someone in the same room with him here at home now. The best I can figure is that he is still slipping things into nooks and crannies in the storage room where the washer and dryer also live and where he often is by himself with myself or Chef's sister in the next room. Another possibility is that he is once again sneaking them into the garbage bag right before taking the garbage out. On Monday, he had at least five pairs of socks in his room. Last night he informed me that he has none left and doesn't know where they are. I reminded him that I've been reminding him to put them into the hamper and that he's been taking them there. "Yes, but they aren't in there now and I don't know where they are."
Chef has $12 in allowance from the past few weeks. ($2.minimum per week, $8. maximum if he takes care of his chores/responsibilities, with numerous opportunities to earn money through other ways at home). In order to receive his allowance on Saturday, he has to have completed his chores and needs to have not tantrummed or "given attitude" on Friday and Saturday. Hopefully this weekend will see us over at the thrift shop so Chef can buy a bag of rags (to replace the ones he's gotten rid of in his ongoing attempt to not have to do any chores) and more socks and other clothing items to replace the ones that have recently "disappeared." Compared to previous years, he has come such a long way in learning/understanding/accepting the natural consequences of his choices, learning how to be a contributing member of his family/community/society as a whole, etc - if only the hygiene and willingness to do chores would come along as well! Tantrumming continues to be a work in progress. It is clear that Chef is not "out of control" during his tantrums. It seems as though Chef specifically chooses to use tantrums.
Some of the other bigger pieces in past years have been going to school/wanting to just be at home and not do anything, stealing, lying, and hoarding.
What's Made A Difference?
Willingness to Go to School:
-Supportive school staff
-Computer Use at school
-"Not At All Fun" theme at home on days Chef doesn't attend school when expected
Stealing:
-Having an adult supportively velcroed to Chef at home,at school,in the community
(if Chef is on his own and there is something he sees that he wants, it's his)
-Chef does a "self-check" as soon as he walks in the door from school
-I often (not always) watch Chef get off the bus and walk to the house to ensure
he is no longer stashing stolen goods in the yard before coming inside
-A lock on my bedroom door, money kept put away
-Stolen items removed immediately upon discovery, expected resitution
Hoarding:
-Having an adult supportively velcroed to Chef
-Chef also does "a self-check" before going upstairs at night, as well as one
when he returns to the main floor if he has been in the basement
-Regular room checks and careful kudos to Chef (because sometimes compliments go
the wrong way in Chef's mind) for any small successes
-Immediate removal and expected restitution for items
Lying:
-When Chef is caught in a lie, he is reminded that we are all a team and that
a team works together. He is expected to return to the person to whom he
has lied and be truthful.
Overall, Chef appears to be much happier and calmer, and have a growing sense of awareness and pride, as he experiences successes in these areas with the required supports. He seems to have a stronger understanding and acceptance of what is acceptable (what works) and not acceptable (what doesn't work) when it comes to how Chef interacts with his environment and the people around him. The hope is that a lot of the rote learning will be habitual by adulthood so Chef has a few less issues to deal with as an adult in the world.
Chef is presently missing out on his free time in the evenings because free time comes after chores and responsibilities have been taken care of. Chef has chosen not to put his laundry in for the past couple of weeks, and most of his clothes have once again "disappeared." The clothing piece truly is a mystery at this point, since Chef almost always has someone in the same room with him here at home now. The best I can figure is that he is still slipping things into nooks and crannies in the storage room where the washer and dryer also live and where he often is by himself with myself or Chef's sister in the next room. Another possibility is that he is once again sneaking them into the garbage bag right before taking the garbage out. On Monday, he had at least five pairs of socks in his room. Last night he informed me that he has none left and doesn't know where they are. I reminded him that I've been reminding him to put them into the hamper and that he's been taking them there. "Yes, but they aren't in there now and I don't know where they are."
Chef has $12 in allowance from the past few weeks. ($2.minimum per week, $8. maximum if he takes care of his chores/responsibilities, with numerous opportunities to earn money through other ways at home). In order to receive his allowance on Saturday, he has to have completed his chores and needs to have not tantrummed or "given attitude" on Friday and Saturday. Hopefully this weekend will see us over at the thrift shop so Chef can buy a bag of rags (to replace the ones he's gotten rid of in his ongoing attempt to not have to do any chores) and more socks and other clothing items to replace the ones that have recently "disappeared." Compared to previous years, he has come such a long way in learning/understanding/accepting the natural consequences of his choices, learning how to be a contributing member of his family/community/society as a whole, etc - if only the hygiene and willingness to do chores would come along as well! Tantrumming continues to be a work in progress. It is clear that Chef is not "out of control" during his tantrums. It seems as though Chef specifically chooses to use tantrums.
Some of the other bigger pieces in past years have been going to school/wanting to just be at home and not do anything, stealing, lying, and hoarding.
What's Made A Difference?
Willingness to Go to School:
-Supportive school staff
-Computer Use at school
-"Not At All Fun" theme at home on days Chef doesn't attend school when expected
Stealing:
-Having an adult supportively velcroed to Chef at home,at school,in the community
(if Chef is on his own and there is something he sees that he wants, it's his)
-Chef does a "self-check" as soon as he walks in the door from school
-I often (not always) watch Chef get off the bus and walk to the house to ensure
he is no longer stashing stolen goods in the yard before coming inside
-A lock on my bedroom door, money kept put away
-Stolen items removed immediately upon discovery, expected resitution
Hoarding:
-Having an adult supportively velcroed to Chef
-Chef also does "a self-check" before going upstairs at night, as well as one
when he returns to the main floor if he has been in the basement
-Regular room checks and careful kudos to Chef (because sometimes compliments go
the wrong way in Chef's mind) for any small successes
-Immediate removal and expected restitution for items
Lying:
-When Chef is caught in a lie, he is reminded that we are all a team and that
a team works together. He is expected to return to the person to whom he
has lied and be truthful.
Overall, Chef appears to be much happier and calmer, and have a growing sense of awareness and pride, as he experiences successes in these areas with the required supports. He seems to have a stronger understanding and acceptance of what is acceptable (what works) and not acceptable (what doesn't work) when it comes to how Chef interacts with his environment and the people around him. The hope is that a lot of the rote learning will be habitual by adulthood so Chef has a few less issues to deal with as an adult in the world.
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