Recent Lunch Mystery Solved - I Think!

June 10, 2011

This evening we were grocery shopping - one of the most consistently pleasant activities with Chef. I really enjoy grocery shopping with Chef. He eagerly engages in every aspect of grocery shopping and successfully completes any and all tasks associated with it. He also is quite chatty while he is checking nutritional labels and prices, asking me whether or not I like certain foods and comparing to his own likes and occasionally the likes of friends at school (yes, the word "friends" seems very accurate this year!), points out if he spots a problem in the store and easily interacts with staff as needed. As we returned to the parking lot, I asked him if he just didn't like the stew anymore and that's why he wasn't taking it for lunches (thinking that maybe he doesn't take lunches when the primary item is something I've made rather than something he's made, and thinking that maybe that's something I'll need to sort of keep an eye on as a possibility). I was wrong.

"No. I just don't like it frozen."
"You've eaten it frozen??"
"No. I meant. Um, I can't think of what I mean. I need it to be thawed up because it's not thawed up at lunchtime."
"I thought you use the microwave at school."
"No. Well I do, but the EA who's with me then doesn't like me using it because I take too long and she's the only EA in the room then and needs to be with the other kids so she doesn't like me using the microwave."
"Did she tell you that, or did you just think that she thinks that way because of something that happened?"
"No, she told me a long time ago so I try not to bring anything that needs the microwave."
"But the main part of your lunches have almost always been cooked food that needs to be microwaved. Why didn't you say something a long time ago when that EA told you that?"
"I didn't want to get her in trouble. Plus I understand, cuz it's alot of other kids too and she's the only EA."
"It has nothing to do with anyone getting in trouble. If you needed a change in the lunches you were bringing, then there needed to be a change."
"K. I wasn't sure what to do when she told me. Besides, I just get full on the fruit I've been bringing anyway, except (Chef's regular EA) says the rash I've sometimes been getting around my mouth might be from the mango I eat every day."

So, one mystery solved - maybe even two! And with that, goodnight!

Glasses at Last!

June 10, 2011

Chef took his glasses to school today!

He also brushed his teeth, and it seemed as though he would take his lunch - he opened the freezer, put his hand into the freezer, paused, was reminded he needed to be out for the bus, removed his (empty) hand, closed the freezer door, walked slowly over to the fruit baskets, picked up a mango and a grapefruit, picked up his glasses, went outside, and started doing some morning exercises. I'll need to explore the "hand reaching into the freezer, removing still-empty hand from freezer without lunch item" with him later. When I intially asked him about it this morning, he said he pulled out his hand because he heard me talking and knew he had to look at my eyes so he closed the freezer door so he could see me. Excellent listening skills recall! The only problem is that he was already going towards the fruit as he closed the freezer door. So maybe "listening skills" was the initial message in his brain but the thought of picking up the fruit interrupted? I asked if his hand couldn't have just picked up the lunch item while it was right there, or did he just not want to take that in his lunch. He said he didn't know.

Last night, after yet another evening of not doing dishes, I asked Chef to sit outside by me while I worked on some deck-gardening. We talked about goals. Chef said his goal is to go to school - excellent life goal! I started asking him questions about the various steps involved in going to school, and kept working backwards until we got back to taking care of one's body, taking care of responsibilities at home, etc. Chef said he didn't want to do jobs at home because he only wants a good job where he can earn lots of money. Of course, we reviewed the ol' "need to show success in small jobs before taking on big ones." I explained (again!) that not everyone likes doing every kind of job, especially when it comes to chores at home, but that they need doing regardless. Chef nodded and said that he doesn't want to do chores. I reminded him that he needed some way of paying back for items he's stolen/damaged. He looked surprised, as though he had forgotten that part. I asked him if he could think of other ways to earn money to repay for items in that category (one past idea was "to make a picture that you could buy from me then I'd give you some of the money" - and I'm pretty sure he seriously thought that was a workable plan! When I offered to do up a website where he could sell pictures, plus numerous other ideas offered to him for making money, he's never shown interest or a willingness to start on anything along those lines). We've explored this possibility before, but this time he just shook his head. I reminded him that the sooner he does some extra chores, the sooner he'd be caught up and the sooner he'd have more spending money. I also told him that I would love to support him in applying for part-time summer jobs this summer but he has to show a willingness to work at home first. He again said that he only gets a little money til then so he doesn't want to work.

If anyone has ideas in this area, feel free to share them! Right now, my approach is to continue to support him in learning through repetition. Incentives historically have not been beneficial (and generally "don't work" with children living with attachment disorder). In the meantime, if you plan on dropping by sometime this afternoon or this evening, bring your own clean cup ;-)

Someone reminded me of something the other day. When a child with attachment disorder is exhibiting some challenges that differ than usual or are of a higher degree, sometimes it's because there's been growth or that they are feeling a healthier attachment and that brings about a sense of fear/panic in them. I think sometimes we forget how scary it is for some kids when they're healing. Chef's grown alot this year. That's been evident in many areas.

When I used to work with adults with disabilities, we'd often talk about putting ourselves in the shoes of the adults for whom we provided support. One individual needed help in using the washroom and sometimes showed frustration in the washroom. Well, there may have been other reasons as well for the frustration, but I'd feel frustrated if I always needed help in that area every single time every single day. And every single day, Chef needs to figure out how to function in this world that he doesn't even understand in so many areas, and he has to do so with a brain that doesn't always function the way he needs it to function and with a perception that makes the world a very confusing place at times. For all these reasons, I believe Chef's doing very well.

But yes, he still needs to do the dishes ;-)

Lunch at Last!

June 9, 2011

Morning:

Chef took his lunch to school! And an entire lunch at that - stew, a mango, a grapefruit. He also picked up a loaf of bread and had intended to take that as well then put it down when he was reminded to take only some of the loaf and to wrap it or put it in a container.

I asked Chef why he hadn't changed his shirt yet this week. "Because I didn't have a bath last night." The schoolbus was already waiting, so I didn't continue the conversation at that point but I'll be exploring that statement with Chef tonight to find out what he meant. Maybe Chef's understanding of putting on a clean shirt after having a bath means the ONLY time you put on a clean shirt is after having a bath. Hmmm.

Partway through the morning I received a text from Chef's EA asking about Chef's glasses because Chef had told his EA that I wouldn't let him have them. I have two thoughts on this - either he's doing his usual and blaming me for his actions and/or choices OR he's confusing the conversations regarding his old glasses, which are to now stay home (though he knows his new glasses are to be at school and he's had numerous reminders to take them there).

This weekend a friend has offered to take us along for a tour of various artists' studios. As often happens regarding such events, I'm torn. As Chef's Mom, I know this would be a beneficial opportunity for him and would create some positive memories in his life. But also as Chef's Mom, it sure would be nice to have some time alone with friends and just focus on myself for a change during an event...shockingly, even with the way Chef has behaved her lately, my neighbour has offered to take Chef for the day so I could have the day to myself. The catch is, that as relaxing as that sounds, I have a sense that I'd be waiting all day for the phonecall saying Chef had run off from her place or was causing problems for her, and that I'd be dealing with his anger all the next day. On the other hand, there is never a guarantee that Chef will go along somewhere. The only thing for certain right now is that I won't be telling Chef anything until Friday evening or possibly Saturday morning because there's always a strong risk that Chef will "act out" if he knows in advance that we're going somewhere new or there's a change in his general routine. Right now, though, I'm definitely leaning towards bringing him along on the studio tour and hoping that the memories from that day will make it all worthwhile.

I've been looking for volunteers for this summer; folks who would be willing to commit to spending at least one hour a week with Chef to take him to the park or swimming, etc. I've put a request on Facebook and have sent emails to the local colleges. My hope is that having different people doing different activities with him throughout the summer would help Chef continue to grow in his social skills and accept a broader variety of people in his life, as well as provide a bit of respite time. It would definitely be of benefit to students who are studying in certain fields, and volunteer opportunities are always good for community-building. We sure haven't had much success in finding individuals to work with Chef otherwise, but I'm hoping that an hour a week will be do-able for some folks who are community-minded.

Morning Brain

June 8, 2011

Today was Day #3 of Chef going to school without his lunch. He's back to waiting til the very last minute to get ready for the bus regardless of how much or how little time he has in the morning. He has lunch servings of one of his favourite stews frozen in the kitchen freezer and there are baskets of fruit on the table/counter. There are days when I've even removed the stew from the freezer and set it out with fruit for him to pick up and reminded him to take his lunch - and yet it is still sitting in the same place as he makes his mad dash out the door once the bus arrives. (There are many times that Chef does bring his lunch. In fact, there are many times that Chef prepares his own lunches AND brings them to school. Other times - well, not so much. Lately, the most consistency there's been with lunches going out the door and breakfast being eaten has been on mornings when I have put Chef's lunch and a portable breakfast item outside for Chef. And while that "works" as far as ensuring he's getting food into his belly, it doesn't work when it comes to supporting independence.) When I've asked what he's been eating for lunch, he says he hasn't been eating anything but his school staff has told me other times that when Chef doesn't bring his lunch, other kids share with him. This is the first year when that's been ok with a school - this is also the first year that Chef hasn't been sneaking food from other students' lunches regardless of whether or not he has his own lunch. This morning, Chef grabbed a mango and an orange on his way out the door.

During the past weekend, Chef found his new glasses that he'd misplaced shortly after receiving them. They look so nice on him! I reminded him to bring his broken glasses home from school on Monday so he could trade and have his broken glasses at home and his nice new ones at school. Chef did great - brought his old glasses home on Monday! His new glasses, however, continue to sit in the front hallway about 3-4 feet from the door. I asked him again this evening how things are going at school without glasses (terribly!) and reminded him again that he needs to bring his glasses to school.

We had an incredible storm last night, complete with lightning, hail, and very loud thunder. Chef and I were out chatting with a neighbour earlier this evening and she asked Chef if the storm had woken him. Chef shrugged and said he'd slept through it. I smiled and reminded Chef that it wasn't long ago when a storm like that would have had him screaming and panicking.

It's definitely nice to look back and see so much growth over the years.

December 5, 2010

Part B

There wasn't a sound from Chef's room until around 9:30 this morning. A few minutes later, I was in the washroom and heard Chef's door open then close. I left the washroom quietly and peeked in his room. No Chef. I walked downstairs and saw him quickly disappearing around a corner. I walked through the kitchen and into the living to find Chef just starting to duck down between the china cabinet and loveseat. He was wearing only socks and had a blanket wrapped around him (he has gone through/gotten rid of numerous pairs of pajamas). I told him to go back up to his room, followed him upstairs, and told him to get dressed. A few minutes later, I told him it was time for a room check because I didn't know if he'd been sneaking downstairs other times during the night. He made an angry face and grumped at me. I reminded him that he was the one who was breaking rules and when he gets caught breaking a rule, it is not ok to take that out on someone else. He grumped again. I told him he could fix his grump or take it outside. He went outside and immediately did some jumping jacks and I called him in a couple of minutes later after I'd checked his room. There were the usual disturbing items but nothing out of the ordinary. Chef came inside in good space. I asked him to return to his room and to sing so I would know that he was in his room. He is presently singing in his room without issue while I'm doing up this morning's blog entry.

It would be great if Chef participates in school-lunch prep today. He hasn't at all for the past few weekends. When he doesn't participate at all, I don't either. That leaves Chef having to prepare his school lunch the night before or in the mornings. He's been leaving it til mornings, then just grabbing an apple or an apple and some crackers or occasionally some leftovers. He hasn't had consistently good school lunches for two weeks now because of his weekend choices. I wonder if he's tired enough of that to make a change and do some lunch prep today.

***UPDATE: After a late lunch today, Chef shovelled the neighbours' front porch (very small) and made a pathway to the parking lot, then came in and independently made his school lunches without issue. He offered to make supper ("to help make up for how I acted today") and was reminded that he gladly could but he would still need to do weekend chores (two household chores - he is also technically supposed to be doing extra chores to pay back for stolen/damaged items, etc., but is behind just on his regular day-to-day stuff at this point). Chef cooked liver, mashed potatoes, and mixed vegetables for supper. It was great. When it was time for dishes, Chef moved very quickly and had the kitchen finished up in about 20 minutes. When I checked the dishes, they weren't clean (I don't mean in a "teenager not cleaning dishes" way or that there were a few missed spots, etc. There were lots of food bits, etc. ) It was great that the usual dragging out of the chore hadn't accompanied the "not cleaning" but it was very clear that Chef again hadn't made an effort to actually wash the dishes. There were no rags for Chef to clean the little washroom downstairs because he's gotten rid of the rags and we weren't over at the thrift shop so he could replace them because he was tantrumming on Saturday. It's all a chain. At this point, I really do believe that it is mostly all a ploy to do whatever it takes to get out of chores. I've suspected that over the years when it came to some things; as time goes on, I'm more convinced. I could be wrong. I realize chores involve a lot of steps and some planning, which is why Chef has written helps to use (which he doesn't use, but he no longer whines, etc., when reminded of using helps), but sneaking through the house to take stuff also requires steps and planning. Repeatedly throwing hard snow/ice at windows also requires steps and planning, evidenced by Chef taking the time to find the "right" pieces and tossing unworthy pieces onto the ground. Independently making his own school lunches requires far more steps and planning, yet Chef is very successful in that area when he makes his lunches on the weekends, and very successful when independently cooking meals otherwise as well.

And so, the chore saga continues...

That Good Ol' Swinging Pendulum

Wednesday, November 3, 2010

This morning, Chef independently got up when the alarm went off the first time, independently did 25(!) minutes of exercise, came downstairs and independently got out his breakfast(!) AND ate it(!), independently got his lunch items together and packed them into his lunchbox AND said he was going to make popcorn to bring along then made the popcorn(!), and only needed prompting during the last few minutes before it was time to leave because he wasn't yet washed or dressed for school.

Wow! This has been a rare and very appreciated morning.

As an aside, Chef asked the other day if people are reading my blogs and I told him that there are readers from a lot of different places. I told him someone from a place called Oman had read the blog, and that I had never heard of Oman and wasn't sure if I was remembering the name of the place correctly. "Oh yeah," Chef replied. "There's a place called Oman. It's on my map."

And Then What Happened?

Tuesday, November 2, 2010

We have had two fairly blissful evenings in our home.

Chef has been respectful, pleasant, and enjoyable. He's been smiling and independently interacting with me, his sister, and his niece. He's been independently and sporadically talking about his day. He's been doing his chores quickly and with positive attitude, and has left himself free time in the evenings! He also made supper last night, and prepared potatoes for tonight's supper.

Tonight we watched "The Soloist." I didn't realize there would be such a strong focus on mental illness. Chef and I had quite a few brief conversations during the movie, and will need to revisit some of them.

Mornings remain about the same when it comes to the actual "getting ready to leave" parts, but I have to say that I remain completely amazed that Chef starts his mornings by independently doing exercises. He also ate part of his breakfast again this morning (two mornings in a row!), and again took a better-sized lunch than he had been taking last week (again, two mornings in a row!), including food that I've prepared for him (which has frequently been a pretty big issue!)

For this I am truly thankful.

Candy Bars, Books, and Tantrums

Monday, November 1, 2010

Yesterday was not fun at our house. It started out ok'ish though. Given the overload of sugar in his system, I gave Chef extra time to sleep in in the morning. When he got up he wanted to make brunch (one of my favourite parts of a weekend!) and did up fried eggs and fried potatoes. We watched part of a video while we ate brunch, then Chef independently started doing chores. About five minutes later, Chef announced that he couldn't clean the bathroom because he only had one rag and that was in the laundry. "Where are the other rags?" "I don't know. I got rid of them" "How do you plan on cleaning the bathroom then?" "I guess I'll have to wait til the laundry's done" "That's not going to work." "(angry whining and escalating body language) Well, what am I supposed to do if I don't have rags??" "First, you can take the whining outside and deal with it there and not bring it back inside." Chef stormed out, stood outside for a few minutes, did some jumping jacks, came back inside when I motioned him in, and did the lunch dishes. While he had been outside, I'd noticed that more of my books were missing from my bookcase. After finishing up the lunch dishes, Chef came into the living room and said he didn't know what to do because he had to wait for the rag that was in the washer. I said that we also needed to discuss the matter of other books missing from the bookcase. Chef immediately stormed, angrily stating that he hadn't taken any books. I told him he could take himself back outside until he was ready to communicate appropriately. Chef tantrummed outside for an hour and a half. When he appeared appropriate and calm for awhile, I invited him back inside. I asked him if he was ready to communicate appropriately. "Yes." "Good, because at some point we'll need to talk about the books." "I TOLD YOU I DIDN'T TAKE ANY BOOKS!!" "Back outside til you're ready to communicate appropriately." Chef stormed outside and started throwing pine cones at the house, repeatedly repeatedly repeatedly ringing the doorbell, repeatedly kicking the door, banging his head against the living room window and making faces at me then screaming when I would leave the living room, yelling that he was cold, etc., etc. Chef tantrummed for at least an hour and a half that time. Once he was able to be back inside, Chef stated that he'd been taking books on his way out the door to school in the morning and hiding them in his lunchbag. Most mornings, Chef runs out the door at the last minute, and I am at the door with him then watching him from the front window til the bus arrives. Lately, however, I have not been right at the door when he comes in after school. The bookcase is right by the door and Chef wouldn't be hard-pressed to be able to slip out a book and stash it in the closet to take somewhere later on. If I am downstairs when Chef comes home, he does a personal check before going upstairs (he usually goes upstairs for a rest after school); if I am upstairs when Chef comes home, he does a personal check when he gets upstairs. We've stopped doing checks for each time Chef goes upstairs otherwise, but it seems to be time to start doing that again. Chef says sometimes he'll say he's going to clean the front entrance (about 5'x5') then hide something in the closet or in his niece's stroller then take it upstairs or stash it outside later.

Chef didn't bring up his laundry from the dryer yesterday. This morning he said he doesn't know where any of his socks are that were just purchased last weekend; I know they were in the hamper, but Chef said they weren't in the laundry room when he took the hamper downstairs. His runners had needed washing on the weekend and he was reminded three times in less than half an hour to put his runners into the washer. That didn't happen; he washed them outside instead. I asked him if he'd forgotten that he's tried that before and it doesn't work. He did work on his lunches last night without issue and actually agreed to take more in his lunches, including a dessert I made for him! This is highly unusual. I'm very thankful he was at that point yesterday. This morning, I packed his lunch into a large, clear tupperware container so it's easy for his school support staff to see what's inside with hopes that it will minimize some of Chef's stealing/stashing attempts. When the bus pulled up, Chef had only been starting to get ready the last few minutes beforehand and was not at all ready to go - though he had actually eaten part of a breakfast! He walked out to the bus barefoot, wearing pyjamas, carrying sandals, his lunch, his jacket (the one that he's kept in the storage room since I bought it for him in summer; it finally got promoted to being brought upstairs and being used!) and a wrinkled outfit he'd pulled out of the dryer. He didn't give his lunch to the driver, and often hasn't been, which usually translates into him eating it on the bus.

I'm a little tuckered out today; actually, a little more than a little.

"Morning After Respite" and "Food"

Chef came home from respite this morning to get his lunch about 15 minutes before his bus would arrive.

When he walked in the front door, he had some difficulty maneuvering around his "stuff" he's been piling for a few days in the front entrance - there were about 6 small items in total that were supposed to be for the outside garbage bin and a small plastic bag for the thrift shop. It was a small pile, but a pile nonetheless, and certainly didn't belong in the front entrance where it would cause problems for Chef using the door. Natural consequences.

When reminded (again!) that the front entrance would be easier to use once the pile is cleared up, Chef chose to clear it up! He did so in three parts; two trips to the bin, then down the lane to the thrift shop with the small bag. Just before he returned, the school division called to say his bus wouldn't be running today due to a medical emergency. I told them I'd work on figuring out transportation and if I couldn't then I'd just keep Chef home. I made a couple plan changes, and was phoning the school when my neighbour rang our doorbell. This was all happening within the first 15 minutes of Chef arriving home. Not fun for me; that much more difficult for Chef. Ah, Monday mornings.

I noticed Chef was wearing a dirty, wrinkled shirt when he came home, so I asked him to change it before heading off to school. He made a face and told me it was clean. I pointed out where it was dirty. This was not received well - our short morning together had been very busy thus far. I told Chef to take a bit of time in his room to just relax and find his focus.

A few minutes later, I called Chef down to get his lunch from the counter and go out to the deck. I'd put everything out on the counter (apple,carrots, peppers, rice/beef casserole), he just needed to pack the items into his lunchbag. Instead, Chef opened the fridge. I pointed out that there were lunch items on the counter for him and that his lunchbag was still in the living room where he'd left it last week. He said, "Ok" and kept looking in the fridge. I told him there wasn't time for anything else and that he needed to get his lunch and go out to the deck. With eyebrows down, he got his lunch items together and carried them out the door.

I've often talked with Chef about preparing "dessert" items together, such as cream puffs or rice krispie cake to take in his lunches with the idea that he would have something right in his lunch that would be immediately available for him when he feels like seeking carb-type foods otherwise. I still think this would be a very beneficial idea for Chef's lunches, though his responses to this have been varied - usually he just doesn't want to make items on the weekends, the ingredients often disappear before the items are made, or the items I make disappear en masse, leaving nothing for lunches. When Chef was in his younger grades (and prior to going gluten-free!), the lunches I packed for him were so large that the top of the lunch bag couldn't fold over. In addition, he also had access to snacks that I brought to school for him on a weekly basis. Chef still secretly and successfully sought out food otherwise - food belonging to other students, staff, the food collection box in the hallway at Christmas, etc., etc. At one point, Chef also had open access to a snack shelf in his classroom; I don't recall if he ever accessed it at all, but he still sought out food otherwise. Food remains a very challenging area for Chef when he does not have an adult with him.