Books and Business

"Mom, did you know...."

This was the beginning of a very, very long sentence in which Chef attempted to explain to me everything that happened in "The Rise and Fall of the British Empire" by Lawrence James. The next day, he started reading "Sarum" by Edward Rutherfurd. Chef's also been reading cookbooks and books about autism.

Chef is also making "pictures to sell" in hopes of starting his own business. He's generally spending a couple of minutes on each picture. In the past, Chef has done some very nice, simple watercolour pieces, and agrees that he wants to have a website to sell some, but when it comes down to doing the base-work for them (drawing the shapes before painting), it's back to mass-producing very basic pictures in very short order.

Chef is frequently talking about wanting to sell items at the local farmers' market. Last week, while at the market for our first time, he suddenly pulled out from his binder of papers a loose piece of canvas he'd painted months ago and announced to me that he was going to sell it. I reminded him that we weren't there as vendors (just playing music for now) and didn't have a sales table set up, and that he could gladly sell some items sometime when we've made plans together regarding what would be reasonable items to sell. Then he realized a lot of baked goods were being sold. This week, there have been many many lists of recipe names, with frequent verbal reminders of the additional need for cookbook names and page numbers. There's also been one long list of necessary ingredients proudly presented to me one day just as we were walking out the door to shop for groceries. Excellent planning! Unfortunately the list only contained the names of the items needed - no amounts, no reference back to the recipe, etc. Chef seemed very disappointed when he realized his ingredient-list was for naught and seemed deflated at the suggestion that he could still use the list and try to figure out the recipes that matched the ingredients, or try again with a new list and let me know when he was working on it so I could help him.

Everything new is step-by-step. It's nice to know there's a degree of motivation that's starting to surface. Hopefully that will stay long enough to smooth out the bits that Chef is finding to be challenging/disappointing.

Lunch at Last!

June 9, 2011

Morning:

Chef took his lunch to school! And an entire lunch at that - stew, a mango, a grapefruit. He also picked up a loaf of bread and had intended to take that as well then put it down when he was reminded to take only some of the loaf and to wrap it or put it in a container.

I asked Chef why he hadn't changed his shirt yet this week. "Because I didn't have a bath last night." The schoolbus was already waiting, so I didn't continue the conversation at that point but I'll be exploring that statement with Chef tonight to find out what he meant. Maybe Chef's understanding of putting on a clean shirt after having a bath means the ONLY time you put on a clean shirt is after having a bath. Hmmm.

Partway through the morning I received a text from Chef's EA asking about Chef's glasses because Chef had told his EA that I wouldn't let him have them. I have two thoughts on this - either he's doing his usual and blaming me for his actions and/or choices OR he's confusing the conversations regarding his old glasses, which are to now stay home (though he knows his new glasses are to be at school and he's had numerous reminders to take them there).

This weekend a friend has offered to take us along for a tour of various artists' studios. As often happens regarding such events, I'm torn. As Chef's Mom, I know this would be a beneficial opportunity for him and would create some positive memories in his life. But also as Chef's Mom, it sure would be nice to have some time alone with friends and just focus on myself for a change during an event...shockingly, even with the way Chef has behaved her lately, my neighbour has offered to take Chef for the day so I could have the day to myself. The catch is, that as relaxing as that sounds, I have a sense that I'd be waiting all day for the phonecall saying Chef had run off from her place or was causing problems for her, and that I'd be dealing with his anger all the next day. On the other hand, there is never a guarantee that Chef will go along somewhere. The only thing for certain right now is that I won't be telling Chef anything until Friday evening or possibly Saturday morning because there's always a strong risk that Chef will "act out" if he knows in advance that we're going somewhere new or there's a change in his general routine. Right now, though, I'm definitely leaning towards bringing him along on the studio tour and hoping that the memories from that day will make it all worthwhile.

I've been looking for volunteers for this summer; folks who would be willing to commit to spending at least one hour a week with Chef to take him to the park or swimming, etc. I've put a request on Facebook and have sent emails to the local colleges. My hope is that having different people doing different activities with him throughout the summer would help Chef continue to grow in his social skills and accept a broader variety of people in his life, as well as provide a bit of respite time. It would definitely be of benefit to students who are studying in certain fields, and volunteer opportunities are always good for community-building. We sure haven't had much success in finding individuals to work with Chef otherwise, but I'm hoping that an hour a week will be do-able for some folks who are community-minded.

No Shirt, No Shoes, No Service?

June 8, 2011

Chef came home from school in good space yesterday. He usually has a rest time when he gets home and yesterday was no exception - snoring was heard in short order and there were no other sounds from Chef's room for nearly 2 hours. Chef came into the kitchen wearing just a shirt; a long-sleeved, button-up shirt that covered
"everything" well, but just a shirt nonetheless. I raised my eyebrows.

"Really? Is wearing just a shirt appropriate?"
"I can't find my shorts for at home" (because Chef is back down to just one pair of pants, he has a pair of shorts that he changes into when he comes home from school and has been using them as pyjamas as well)
"You can't find them?"
"I left them at school."
"Should they have gone to school?"
"No."
"Tell me what should have happened this morning."
"I should have gotten dressed before the bus came."
"What do you need to do now?"
"Put on my robe."
"Quickly. Then we'll do supper on the deck."

I went into the washroom and when I came out I noticed Chef's robe still on the living room chair but I knew I'd heard the back door. Sure enough, when I glanced out, there was Chef sitting on a chair on the deck, eating. Shirt only.

"Is this appropriate?"
"Um. No. I was hungry."
"I don't want your bare bottom on one of my chairs. Get off the chair immediately and get your robe."

I came inside without closing the door behind me, thinking Chef was following. He wasn't. I glanced back out the window and saw him sitting on the deck, eating.

"What did we just talk about that you need to do?"
"Um. Get my robe?"
"Exactly. Get your robe on. Find your focus or your willingness to do what you need to do, whatever it is you need to find to move on appropriately with your evening, find it now."

Chef stood up and started doing some jumping jacks.
"I don't want to see your penis when I look out the window, and the folks across the way sure don't need a show. Come inside, put on your robe, find your focus."

Thump.Thump.Thump. Chef was now doing jumping jacks with his shirt tucked between his legs.

"Dude! To your room. Immediately."
"I'll look dumb in a robe!"
"To your room."

As Chef walked past the living room chair, he glanced down at his robe and said, "Oh, there it is."

When Chef was called down a few minutes later, he immediately put on his robe.

Chef remained in good space the rest of the evening. At one point, he asked again whether we're going to any music performances this summer, chatted again about how his EA is leaving for Africa, we talked a bit about again at how surprised I was that he hadn't wanted to finish a can of iced tea the other day because it was too sweet for him. When Chef started dishes, I went up to see how things were in his room since the ripped-open lining of the armchair and books had been discovered. The concern was that the neighbour thought that the first item Chef had thrown onto her deck was likely a screw or something along those lines. I'd noticed awhile back that Chef had removed a couple of the nails out of the back of his computer desk. And he'd started more toenail collections. All in all, time to do a safety check.

And there they were - little piles of staples that had been removed from the underside of the armchair. The chair's been in Chef's room for over a month, I think, and the lining was just torn open within the past week. The staples will have been removed within the last two days. I'm still not sure when Chef will have taken the pile of books upstairs, nor how he got them home without any of us noticing. I do know that he's sometimes done such in stages; hidden something outside then stealthily brought it inside at some point and hidden it somewhere else, etc. Sometimes he's even forgotten about items he's hidden. I don't usually watch Chef walk from the bus anymore, and there have been a couple of days here and there when my daughter has been home when Chef has arrived at home, so there are possibilities there for stolen books to make their way into the house. Chef always does "a check" before going up to his room, but not always when he is going upstairs under the guise of cleaning the upstairs bathroom so there's that possibility. Hmmm.

At any rate, it's clearly no longer safe for the chair to be in Chef's room. He brought it downstairs and took it out to the trash, along with the remainder of the nails I'd pulled out from his computer desk.

And with that, we called it an early night and Chef was soon snoring upstairs.

Books

June 6, 2011

Chef's bedroom is fairly empty

Right now, it contains a computer desk (which is slowly being taken apart), a mattress, what is left of the bench from when the piano keyboard was in Chef's room, an upholstered armchair, and a laminated map which Chef keeps on the floor beside his mattress.

After years of continuing to attempt to create a nice space for Chef and then attempting to help Chef create a nice space only to have numerous items just not last very long within those four walls, Chef stated that he feels better with nothing in his room. Kudos for self-awareness and communication.

Books in the bedroom are a bit of a tricky area though. We have tons of books, and Chef is a great reader. But books in the bedroom are a different creature - they've kept Chef up at night making it nearly impossible for him to function the next day, they've woken others in the night when they've dropped onto the floor, they've had pages torn out and turned into teeny bits of paper ball lined up along the bedroom baseboards or made into spitballs to decorate the bedroom ceiling or turned into paper airplanes and flown out the bedroom window (years ago, some even had notes written on them, something to the effect of, "Please help! My mother has been in the hospital for weeks and I have been here by myself. Please go to shoppers and get me cereal and chips. If you don't do this, imagine how you are making someone feel"), and there have been times when books have been the reason that Chef seems "off" on an occasional evening.

For all those reasons and then some, Chef does presently have limited access to books. Magazines can be in the bedroom anytime at all as long as they are magazines that belong to Chef. Books, however, are not to be in his bedroom unless they are his own or he has asked permission to borrow someone else's book, and they can only be in his bedroom during certain times - anytime (free time) on the weekend as long as they are brought back downstairs before going to bed Sunday night, and anytime (free time) during the week as long as they are brought back downstairs before bedtime.

The exception: no sneaking/hiding books upstairs. As mentioned earlier, there have been times that Chef has seemed "off" during an evening/afternoon and it has later been discovered that his goal was to be sent to his room so he could read. Reading as a goal? Awesome. Trying to get sent to your room? Not cool. Such was the case today. Six books tucked into the ripped lining on the underside of the armchair. So we chatted. The lining and the books have been removed. Chef is in bed. Tomorrow is a new day.

Monday, May 30, Part Two

Chef hates attending medical appointments himself, and he isn't big on me attending mine either.

Last Tuesday, Chef needed to go over to our neighbour's place in the morning until the school bus arrived. I had to be at appointments about an hour away. Chef has always found it difficult to manage if he knows I'm not feeling well or have medical appointments. His anxiety is heightened during such times, and there's always a delicate balance between preparing Chef for possible changes to his day (if he needs to go to respite due to appointments) and keeping his anxiety at bay otherwise. If Chef is told too soon about a change, it heightens his anxiety which is usually spilled out in various ways til the event happens. If he's not told til the last possible minute, there's a risk of anger/mistrust over not being told earlier.

In hopes of providing enough time for Chef to process his feelings beforehand and not take out his anxiety on our neighbours, I told Chef two days before my appointment that I would be leaving on Tuesday morning and he would need to go to our neighbours' place til the school bus arrived. Chef asked a few questions about when I would be back, where the appointment was, and how I felt about the appointment. I'm always matter-of-fact with those types of responses with Chef - I wouldn't be back til after Chef was home from school but his sister would be waiting for him at home when he got off the bus, provided the name of the hospital and general location, and told him I was looking forward to the appointment because it would help figure out what's happening with my leg because it doesn't feel right sometimes. Chef nodded. Over the next couple of days he seemed unsettled and a bit on edge and asked a few times for the same information about my appointment. On Tuesday morning, he seemed to be in good space when he went over to the neighbours' house. When I called to make sure he'd gone inside, my neighbour said she'd been teasing Chef a bit about having heard him going up and down the stairs the night before (we live in a townhouse and share a wall). She said that Chef had told her that he wasn't making any noise on the stairs - "It was Mom throwing books." When the neighbour told him she knew it was him going up and down the stairs and not books being thrown, he kept to his statement. I told the neighbour she could go ahead and let him know that she'd told me his story so he knows we're all on the same page, then we chatted a bit and hung up. An hour later when I got to the hospital, there were numerous calls from my neighbour on my cell phone so I called her back while I was walking through the parking lot. Chef had run off. He hadn't waited for the bus and she didn't know where he was. She had tried calling the school only voicemail was available in the resource dept, and she didn't know if she should call the local police. I reassured her that I would call the police (who help us search when Chef disappears) and the school. Eventually we learned that Chef had shown up at the school! As stressful as that half hour was, it was equally shocking (and reassuring!) to learn that Chef had shown up at school.

Chef let his resource teacher know that he had run off because he was angry with me for going to my appointments.

It's difficult for kids like Chef. When things don't work out, he blames me. When his choices cause problems for him, he blames me. When he no longer has something because he wrecked it, he blames me. It almost seems like an extension of the need for an external brain. He does, however, occasionally show that he is slowly learning to accept responsibility for his choices. But the interesting thing is that for all his blaming and all his feelings of hatred and all his anger, he feels a lot of anxiety over my health. When I am down with a cold/flu, he usually does "act up" quite a bit (anxiety, change of routine, uncertainty of what to do) but he also dotes on me with numerous offers to make me some tea and to cook supper. He has also occasionally shown anger when I've said no thanks to the offers (wants to help, feels rejected), but he does go out of his way to be caring if I'm sick. And when he isn't having to deal with problems caused by his choices or deal with his anxiety, he can be a very caring family member. It sort of seems like a meadow of wildflowers being paved over with asphalt - every once in awhile the asphalt cracks enough to let the sun through and a flower eventually surfaces. That meadow is still there, it just needs ways to get through to the surface.

As Chef's Mom, it's interesting to see the changes, shifts, movements in my own journey. There was a time when this past weekend would have felt extremely heavy while it was happening and for a number of days afterwards. Now, it's just the way the weekend went. It certainly wasn't a pleasant weekend, but Chef is showing signs of growth and development and for that reason, it was a meaningful and successful weekend. It's barely one day out of this past weekend, and it feels ok. I know that Chef's support at school this year is the best school support he's received so far towards helping him learn how to live a healthy, appropriate, successful life. I know that Chef is growing and developing, and even though he is still struggling with honesty and good choices and taking care of his body, he isn't "rejecting" all of those things as strongly as he seemed to be rejecting them in the past. I know there are community members and friends who are available to help when Chef follows his impulse to run off from somewhere when he's dealing with anxiety (or just wants to go downtown for candy, though that hasn't been his focus this year), and that there are now more folks around who have a better understanding of Chef's needs and the needs of kids who live with similar challenges. But the biggest piece in the okay-ness is seeing Chef learning to work through issues and learning to address them appropriately in a healthy manner. Yes, the tantrum was over an hour long - but it was less than two hours and didn't heighten to an "outside-only" or "chat with the police" level. Yes, it took all weekend to get the dishes started - but Chef relearned and accepted the importance of good attitude and appropriate communication during a time that was very frustrating for him. It was hard work - but he worked at it.

It all takes time.

Monday, May 30, 2011

Today is Monday.

Many of my friends dread Monday. Perhaps "dread" is too strong a word. Many of my friends don't look forward to the shift back to the workplace schedule and ongoing expectations.

For me, Monday is usually a day to breathe. Relax. Take in the peace and quiet.

As some of you know, Chef believes that he should not have to do chores or anything that he believes to be related to chores. This includes activities such as doing dishes, bathing, picking up items he drops on the floor in various rooms throughout the house, cleaning up urine in his room, cleaning up messes he makes throughout the house, dressing, etc., and sometimes even goes so far as including tossing food into his lunch container even if there are various food items out on the table in addition to the food in the fridge/cupboards, or making himself a sandwich.

It is a very, very rare occasion for Chef to do one of the above without prompting. It is equally as rare for Chef to do any of the above without numerous attempts at getting out of doing any of the above. Some of the challenges with which Chef lives do make such activities difficult for him to varying degrees - but the fact remains, he is capable of doing them, he gladly does similar activities if he deems them to be in the "fun" category (cooking, video games, running to get candy, making water balloons, making a bottle for his niece/playing with and picking up after his niece, etc. Chef seems to have the energy/ability for what he enjoys, and little to none for what he doesn't enjoy.

It used to be that Chef would come up with numerous attempts at avoiding even the start of any of the above - but for the most part that has changed. It is now more common for him to seem to be starting one of the above and then attempt to do whatever he thinks might get him out of continuing/completing the task at hand.

For example, Chef started this past Saturday with a tantrum because he didn't want to do the dishes. In all fairness, there were a lot of dirty dishes (so many, in fact, that by Saturday afternoon I'd told Chef I wouldn't be cooking due to the lack of clean dishes and that meals would be cold food until the dishes were done) but when Chef had chosen not to do the dishes before the weekend, he rediscovered that the dishes did not go anywhere nor did anyone else do his chore for him.

When Chef rediscovered that tantrums don't work, he hid the teatowels. When that didn't work (and he had pretty much worn himself out from having to turn to his exercise program to deal with his extra energy he had for whining, attitude, etc), he began washing the dishes. Slowly. And not actually washing/drying them. It took over an hour before he'd actually washed/dried two items. When he rediscovered that wasn't going to do much other than cause more problems in his day, he started washing the dishes. After 10 minutes of reasonable effort on his part, I knew Chef and I both needed a rest and I told him that he could take a break because he was now showing good attitude towards his work. I'd hoped that, even though there might be a few steps back after having a rest, the message that the antics involved in chore-avoidance weren't worthwhile would stick. Chef was reminded to have a bite to eat before having a rest since he'd only eaten two kiwis for breakfast and had whined when I reminded him he needed more to eat.

After having a rest, we went out for a walk for about half an hour. On the way home, I bought myself a small takeout for lunch and told Chef that I sure wasn't about to buy him lunch after the way he'd behaved and that he would need to make his lunch when we got home. Chef again chose to eat a bunch of fruit. This isn't new. Chef has gone through periods in the past when his focus is primarily on fruit, though it was interesting to see him focus on it on the weekend after he'd said it was too much work to put into his school lunches even though it's sitting in baskets on the table. As an aside, mayonnaise is a big focus for Chef right now - mostly while doing dishes or using the washroom. We went through two jars last month. He hasn't been going for the spices recently, and my daughter has kept a bottle of vanilla in the cupboard the last couple of weeks without incident.

Back to the dishes - to make a VERY long story short, it was late Sunday evening before Chef actually started putting in a reasonable effort at getting them done. I sure got a lot of music practice in this weekend :-) There was no participation in making lunches (and I don't make Chef's lunches for him if he hasn't participated in taking care of his responsibilities), no bath, and Chef hadn't eaten more than some fruit earlier in the day, (even with reminders that of what was available in the refrigerator and even though I'd put out meat and wraps by the fruit so he could make wraps for himself) stating that he was going to wait until I cooked supper. I reminded him that I still wouldn't be cooking due to the amount of dirty dishes and unavailable prep space. He made a face. I then reminded him that cooking would also create more dirty dishes. Chef relaxed his face and said "K" but still didn't eat. When I later told Chef it was bedtime, he put his head to the side, made a scowling face and a scoffing sound, and said "Well, can I at least have a piece of fruit?" I reminded him that he was supposed to eat earlier and had had opportunity to do so. "Well, I'm hungry NOW." I told him he could go out and have a seat on the deck. I brought him out a bowl of baby spinach. He stated he wasn't hungry and that he didn't like spinach. I reminded him that he's eaten spinach many times and has even chosen to make spinach salads and that his body could use the nutrients. "It's gross." I picked some up, put it in my mouth, chewed it, swallowed it, said "eat", and walked back into the house. Chef tossed the spinach over the deck and sat on the chair grumping and saying he was hungry. I came out, put more spinach into his bowl, and asked if he needed me to feed him. Chef scowled and ate. When he came inside, he thanked me and apologized for his behaviour on the weekend. We talked a little bit about choices and consequences and the importance of eating and the importance of talking/behaving appropriately and about time and donating weekends to trying to get out of a chore rather than taking care of responsibilities then enjoying the weekend. We talked about dignity and responsibility. We talked about switching chores to the mornings since he doesn't want to do them in the evenings and on weekends, and told him he could try that and see how that goes. This morning, I woke Chef twice but both times he went back to his room. When I woke him the third time, I reminded him that he needed to get up earlier today but was now later than usual. He said he had gone back to bed because the alarm hadn't gone off. I went and turned on the alarm, he was up a couple minutes later and working on getting the kitchen cleaned up. This morning, his job was to wipe the stove and get the cupboard under the sink back in shape from previous choices Chef had made regarding the garbage pail. He seemed to be in good spirits, until I reminded him that he didn't have much extra time this morning because he kept going back to bed. He grumpily wiped the stove then brought in the garbage pail (he'd taken the pail out to empty it then put it under a chair on the deck the other day when I told him it couldn't come back inside smelling like that after he'd decided not to put a bag inside, and there wasn't time for him to wash it at the time because we were on our way somewhere), put it under the sink, and closed the door. He was reminded it needed to be rinsed and a bag needed to be inside. He very slowly (and grumpily) opened the door and very slowly removed the pail and very slowly walked to the bathroom with it. Everything was in slow motion for the next while - until the bus arrived! Chef quickly ran down the hallway, grabbed his clothes, and ran out the door to the waiting bus.

Clothing: We've turned the tables. If Chef leaves an item on the floor, it goes to the thrift shop. Of course, I'm the only one who seems effected by that at this point but I'm hoping that maybe that will help motivate Chef to start taking care of his belonging and his home. It didn't "work" in the past, but trying again! At one point, I decided to see how long he would actually leave something on the floor and have to step over it/walk around it, etc. I didn't say anything about two items - one was a pair of his pants on the floor in the front hallway where he had to walk over/around them to go out the door, going up/down the stairs, and to get to closet where his clothes are. Another item was one of his hats which sat on the kitchen floor. A week later, both items were still there. If I prompt Chef to pick up an item, he will pick it up then he will usually stash it somewhere rather than putting it away "because it's easier than putting it away." In order for Chef to pick something up and put it away (clothing, paper that he drops, cleaning up a mess he's made, etc., well basically anything that requires effort) I usually need to provide a verbal prompt and then see the task through with a frustrated Chef.

Today is Monday. Relax. Revitalize.

December 5, 2010

Part B

There wasn't a sound from Chef's room until around 9:30 this morning. A few minutes later, I was in the washroom and heard Chef's door open then close. I left the washroom quietly and peeked in his room. No Chef. I walked downstairs and saw him quickly disappearing around a corner. I walked through the kitchen and into the living to find Chef just starting to duck down between the china cabinet and loveseat. He was wearing only socks and had a blanket wrapped around him (he has gone through/gotten rid of numerous pairs of pajamas). I told him to go back up to his room, followed him upstairs, and told him to get dressed. A few minutes later, I told him it was time for a room check because I didn't know if he'd been sneaking downstairs other times during the night. He made an angry face and grumped at me. I reminded him that he was the one who was breaking rules and when he gets caught breaking a rule, it is not ok to take that out on someone else. He grumped again. I told him he could fix his grump or take it outside. He went outside and immediately did some jumping jacks and I called him in a couple of minutes later after I'd checked his room. There were the usual disturbing items but nothing out of the ordinary. Chef came inside in good space. I asked him to return to his room and to sing so I would know that he was in his room. He is presently singing in his room without issue while I'm doing up this morning's blog entry.

It would be great if Chef participates in school-lunch prep today. He hasn't at all for the past few weekends. When he doesn't participate at all, I don't either. That leaves Chef having to prepare his school lunch the night before or in the mornings. He's been leaving it til mornings, then just grabbing an apple or an apple and some crackers or occasionally some leftovers. He hasn't had consistently good school lunches for two weeks now because of his weekend choices. I wonder if he's tired enough of that to make a change and do some lunch prep today.

***UPDATE: After a late lunch today, Chef shovelled the neighbours' front porch (very small) and made a pathway to the parking lot, then came in and independently made his school lunches without issue. He offered to make supper ("to help make up for how I acted today") and was reminded that he gladly could but he would still need to do weekend chores (two household chores - he is also technically supposed to be doing extra chores to pay back for stolen/damaged items, etc., but is behind just on his regular day-to-day stuff at this point). Chef cooked liver, mashed potatoes, and mixed vegetables for supper. It was great. When it was time for dishes, Chef moved very quickly and had the kitchen finished up in about 20 minutes. When I checked the dishes, they weren't clean (I don't mean in a "teenager not cleaning dishes" way or that there were a few missed spots, etc. There were lots of food bits, etc. ) It was great that the usual dragging out of the chore hadn't accompanied the "not cleaning" but it was very clear that Chef again hadn't made an effort to actually wash the dishes. There were no rags for Chef to clean the little washroom downstairs because he's gotten rid of the rags and we weren't over at the thrift shop so he could replace them because he was tantrumming on Saturday. It's all a chain. At this point, I really do believe that it is mostly all a ploy to do whatever it takes to get out of chores. I've suspected that over the years when it came to some things; as time goes on, I'm more convinced. I could be wrong. I realize chores involve a lot of steps and some planning, which is why Chef has written helps to use (which he doesn't use, but he no longer whines, etc., when reminded of using helps), but sneaking through the house to take stuff also requires steps and planning. Repeatedly throwing hard snow/ice at windows also requires steps and planning, evidenced by Chef taking the time to find the "right" pieces and tossing unworthy pieces onto the ground. Independently making his own school lunches requires far more steps and planning, yet Chef is very successful in that area when he makes his lunches on the weekends, and very successful when independently cooking meals otherwise as well.

And so, the chore saga continues...

December 5, 2010

Part A

The past few weekends have all had tantrums. Wait, there was one tantrum-free weekend that took place right after Chef's appointment with his mental health worker and "new" psychiatriast. Chef had stated after the appointment that he was embarassed by what had been discussed during the appointment. That weekend, there were no tantrums. There was the usual not wanting to do chores, etc., but no tantrums. That was new. Usually, after appointments in which concerns are discussed, Chef displays his feelings disrespectfully.

That was a few weekends ago, and there has been a tantrum every weekend since. All the tantrums have been chore/responsibility-related or stealing-related. Chef hates chores or anything that he deems to resemble a chore, and Chef becomes angry if something he has stolen has not been used by him prior to the item being discovered missing. Otherwise, things are going quite well. At this point, all tantrums are redirected to outside of our home because Chef has been destructive inside our home in the past.

Last weekend, we were enjoying a very pleasant weekend together - until around 1pm on Saturday when I discovered $20. was missing from my wallet(which I thought I had hidden well enough, but obviously hadn't). It was about four hours before Chef stopped behaving inappropriately and close to another hour before he admitted that he'd taken the money and hidden it. He tried explaining to me that he needs money to have like other kids. I agreed. I also reminded him that other kids don't spend weeks on end trying to avoid doing a chore, and that they do what they can to earn money rather than stealing it. I asked if he needed me to remind him of the allowance/money-earning system in our home. "No, it's ok," was the reply. On Sunday morning, Chef didn't come out of his room til just before noon and was still showing anger about the money. He was reminded that he could use his anger management tools/activities to help himself feel better and turn things around, or he could take himself outside. He stormed out of the house and started repeatedly kicking the door and ringing the doorbell and raging for just over an hour. Thankfully, the neighbour and I had already arranged for Chef to be at her place Sunday afternoon from 1pm til bedtime. When I opened the door and told Chef he could head over to the neighbours', he stopped, yelled that he was hungry, and that he didn't want to go to the neighbours' place. I agreed that I would be hungry too if I'd spent my lunchtime tanrumming instead of eating. A few minutes later he went over to the neighbours' house. A few days later, he told me he's never tantrumming again because he didn't like having to suddeny go to the neighbours' house. I didn't respond to the comment.

This past Thursday evening, Chef and I went with friends to a Christmas party at an art gallery. The staff were instructing folks on how to make origami ornaments to decorate the gallery's gigantic tree. Chef dove in with enthusiasm. Origami is one of his interests and he is very skilled at picking it up quickly. When he is shown something to make from paper, he will initially make quite a few. If he runs out of paper, he'll just rip some to the necessary sizes to make more. I've been amazed at how tiny some of his cranes have been. Once the novelty wears off, he doesn't do origami again until someone other than me does more and then he's back into making beautiful pieces again. On Thursday, Chef learned how to make an origami Christmas ball and an origami pop-star, and made quite a few for the gallery's tree then brought some home and has been making a few pop-stars since. When I encouraged him to show some of the folks at school how to make then, he said he wasn't going to show anyone at school. I have a sense we'll have a nice number of them to hang in our home for the season though.

On Friday, Chef informed me that there were no rags (again) to do any chores, and he'd already taken close to an hour in the kitchen without having actually washed any dishes. I hadn't been feeling well since Thursday night, and just sent Chef to bed early on Friday. Chef was up at 6am doing exercises on Saturday morning. From my room, I called to Chef to go back in his room til later because it was too early to be doing exercises on a Saturday. Chef went back to his room. At 7am, Chef was out in the hallway doing exercises again. I told Chef he needed to wait until I was up before starting his day. Chef said, "OK" and returned to his room. I was up around 9, but there was no sound from Chef's room until just after 11am, at which point there was banging. When I knocked on his bedroom door, there was no answer. My second knock was met with a loud banging in Chef's room. I opened the door to see Chef sitting on his floor wearing just a shirt and banging his heel against the floor with an angry look on his face. I told him he needed to use his tools and behave appropriately or take himself outside. He looked down at his feet and banged again. I told him to take it outside. Chef stood up, put on a pair of pants and socks, walked down the stairs, put on his outerwear, went outside, then immediately started yelling that he was cold. I opened the door and told him this was his one reminder to work off his anger and then he could come in, that doing something physical would warm him up, and that the sooner he shows he's being appropriate, the sooner he'd be inside. Chef continued to yell and make "foghorn" sounds. He continued yelling and "foghorning" for awhile, then started picking up snow and throwing it at the house. A few minutes later, he started throwing small balls of hard snow at the door, then the window, then would quietly look for large chunks of hard snow and/or ice and hurl them at the window. I wasn't too concerned at that point because he was far enough away that it wasn't making an impact and I figured he'd quickly tire of the physical energy required. Wrong. He was shortly seeking out large chunks of the hard stuff and coming closer to the house to hurl them at the window and at the neighbours' window. I called the police and explained the situation, and that my son needed the message from them that this was not appropriate. I had the blinds closed at a certain angle that allowed me to see out if I stood in a certain place. Chef would scan the living room window, then step back and look up at my bedroom window and hurl snow then look at the living room window again or at the neighbours' house. I saw that after my son would throw at the neighbours' window, he'd then grin and laugh as he turned to pick up more snow. When he'd throw at our window, he'd yell and "foghorn." I called the neighbour to let them know that the police were on their way. When the police arrived, my son told them that he was angry because he knew he had to do exercises. Needless to say, I informed the officers that he usually does an exercise program on his own every morning and that I hadn't allowed him to exercise as early as he'd wanted that morning. I also mentioned Chef's "do anything to get out of chores at all cost" way of thinking and the steps that needed to happen before Chef could come back into the house. I also informed the officers that Chef's usually employed the yelling of, "I'm hungry!" when tantrumming outside if he has tantrummed through a mealtime and missed his meal. The officers were very clear with Chef about the importance of listening to his Mom, and directed him to start doing some physical exercise. They also informed him that if he'd broken either of the windows, they'd be cuffing him and taking him to the youth detention center where he'd have to stay in a tiny room by himself and would only be allowed out for meals and a short break each day. (Unfortunately, that information has never been much of a deterrent for Chef, even when his mental health worker talked with him about it when he was around 8 or so. Chef has stated in the past that he'd like to be able to just sit and do nothing all day.) I informed the officers that the last time I'd called in officers, Chef had started up again as soon as they'd left and that Chef needed to know that we were all on the same page about what would then happen. The officers talked with Chef more about being appropriate and stated that they would be returning to deal with him again if he continued once they left. They stayed and talked with me a few minutes while Chef got into a jumping jacks groove and seemed to be turning things around. I thanked them, they left, Chef continued exercising, and a friend of mine came over to hang out in the house for awhile so Chef would be more willing to get his chores done. Chef came in appropriately and started cleaning up the kitchen appropriately. Then began a few "games" here and there; flitzing dirt from the kitchen doormat out into the living room, removing his dirty sock from his foot to use as a rag because he'd gotten rid of the rags so he wouldn't have to do chores, pretending to be cleaning the bathroom upstairs while we were downstairs but instead going into my bedroom, which I had mistakenly left unlocked, and removing items then hiding them in the bathroom for later retrieval, etc. Chef lied about being in my bedroom and made an angry face. Back outside to deal, but this time he immediately did some exercises. When I asked him if he was ready to come inside and be appropriate and honest, he asked if my friend was still there. I asked him again if he was ready to come inside and be appropriate and honest. He angrily asked if my friend was still there. I closed the door. Chef turned to face the house, pulled his toque over his head, and started foghorning while jumping - then started losing his balance, stopped, put his hat on properly, turned around, and did jumping jacks. A few minutes later, Chef was honest about what items he'd taken from my room and where he'd put them, and started dishes. He finished dishes just before 6pm, had supper, and went to his room. Chores finshed so far this weekend: dishes. Sort of. I still need to weed out the ones that received the "dip,dip,dry" treatment. Chores started: floors.

Weekend Balance

Chef spent Friday evening with his sister and niece. I was pleasantly surprised to find that he'd worked on weekend chores. Saturday morning and early afternoon were great; Chef ate, washed up and dressed (still sandals though; he continues to say he can't find his socks because his sister put them somewhere, which she did - on top of the dryer after helping Chef with his laundry. This is the second weekend that Chef has again said that he doesn't have his socks anymore, even with reminders of exactly where they are), and seemed quite relaxed and happy as we ran errands together. We got home just before supper and I reminded Chef that his mattress was still in the front yard and needed to be cleaned up. Chef said ok, then went outside. Glancing outside a few minutes later, I noticed a seemingly angry Chef tearing apart the mattress even more; foam and other mattress bits were strewn across the yard. I opened the door and asked what was happening. Chef looked at me angrily and said that he knew I still didn't believe that he hadn't hidden anything in his mattress. "Well, that's right, but the issue right now is that you need to get your mattress cleaned up so it's not in the yard anymore." Chef started escalating. I reminded him that all he needed to do right now was clean up the mattress and that we weren't discussing anything else about his mattress today. Chef escalated. I reminded him of his anger management tools. Chef continued his yelling and whining and angry facial expressions; I shut the door. Two hours later, the mattress was cleaned up and Chef was calm and inside. He had a quick bite to eat, then we walked down to a small local cafe for an evening of music/jamming. It was interesting to note that when we were listening to the performing group for the first half-hour, Chef expressed some difficulty with the noise-level yet when I went up and started playing with the band, Chef independently and seemingly enthusiastically moved so he was sitting right up front by the band.

On Sunday, Chef attended an AGM with me as well as an afternoon performance, then we spent the evening having a leisurely, story-filled supper with a friend. On the way home, we talked about how Chef had used two hours to tantrum when that time would have been much better spent working together on his lunches for the week then having free time. Chef agreed.

A Gold-Star Week at Home, Silver for School Marks, Coal for Dishonesty at School

Today is Friday.

What a nice week we've had. Chef has continued his mornings of independent exercise, eating his breakfast without prompts, and getting his lunch items out and packed into his lunchbox without prompts. Hygiene and making it out to the bus on time are not happening. Today Chef went out to the bus barefoot and carrying his sandals again, but today he was running rather than walking.

Yesterday after school, Chef and I walked downtown to meet up with a few of my friends. Chef sat at his own table and read newspapers/magazines. When we got home, Chef independently started his chores and put in his laundry! After supper, Chef cleaned up the kitchen, cleaned up the upstairs bathroom, then spent his "free time" in his room because he'd lost his choice of activities due to choices he's been making at school.

Chef's resource teacher had received an email from Chef's art teacher. Chef has been telling his art teacher that he needs to leave class to go have meds. He hasn't been having meds at school and hasn't been going to the resource room after being excused from his class. We don't know where he's been going after leaving the classroom.

Chef brought home papers yesterday stating that there are a lot of assignments Chef hasn't submitted but he is getting excellent marks.

A lot of positives this week, combined with a pretty big concern.

That Good Ol' Swinging Pendulum

Wednesday, November 3, 2010

This morning, Chef independently got up when the alarm went off the first time, independently did 25(!) minutes of exercise, came downstairs and independently got out his breakfast(!) AND ate it(!), independently got his lunch items together and packed them into his lunchbox AND said he was going to make popcorn to bring along then made the popcorn(!), and only needed prompting during the last few minutes before it was time to leave because he wasn't yet washed or dressed for school.

Wow! This has been a rare and very appreciated morning.

As an aside, Chef asked the other day if people are reading my blogs and I told him that there are readers from a lot of different places. I told him someone from a place called Oman had read the blog, and that I had never heard of Oman and wasn't sure if I was remembering the name of the place correctly. "Oh yeah," Chef replied. "There's a place called Oman. It's on my map."

And Then What Happened?

Tuesday, November 2, 2010

We have had two fairly blissful evenings in our home.

Chef has been respectful, pleasant, and enjoyable. He's been smiling and independently interacting with me, his sister, and his niece. He's been independently and sporadically talking about his day. He's been doing his chores quickly and with positive attitude, and has left himself free time in the evenings! He also made supper last night, and prepared potatoes for tonight's supper.

Tonight we watched "The Soloist." I didn't realize there would be such a strong focus on mental illness. Chef and I had quite a few brief conversations during the movie, and will need to revisit some of them.

Mornings remain about the same when it comes to the actual "getting ready to leave" parts, but I have to say that I remain completely amazed that Chef starts his mornings by independently doing exercises. He also ate part of his breakfast again this morning (two mornings in a row!), and again took a better-sized lunch than he had been taking last week (again, two mornings in a row!), including food that I've prepared for him (which has frequently been a pretty big issue!)

For this I am truly thankful.

Candy Bars, Books, and Tantrums

Monday, November 1, 2010

Yesterday was not fun at our house. It started out ok'ish though. Given the overload of sugar in his system, I gave Chef extra time to sleep in in the morning. When he got up he wanted to make brunch (one of my favourite parts of a weekend!) and did up fried eggs and fried potatoes. We watched part of a video while we ate brunch, then Chef independently started doing chores. About five minutes later, Chef announced that he couldn't clean the bathroom because he only had one rag and that was in the laundry. "Where are the other rags?" "I don't know. I got rid of them" "How do you plan on cleaning the bathroom then?" "I guess I'll have to wait til the laundry's done" "That's not going to work." "(angry whining and escalating body language) Well, what am I supposed to do if I don't have rags??" "First, you can take the whining outside and deal with it there and not bring it back inside." Chef stormed out, stood outside for a few minutes, did some jumping jacks, came back inside when I motioned him in, and did the lunch dishes. While he had been outside, I'd noticed that more of my books were missing from my bookcase. After finishing up the lunch dishes, Chef came into the living room and said he didn't know what to do because he had to wait for the rag that was in the washer. I said that we also needed to discuss the matter of other books missing from the bookcase. Chef immediately stormed, angrily stating that he hadn't taken any books. I told him he could take himself back outside until he was ready to communicate appropriately. Chef tantrummed outside for an hour and a half. When he appeared appropriate and calm for awhile, I invited him back inside. I asked him if he was ready to communicate appropriately. "Yes." "Good, because at some point we'll need to talk about the books." "I TOLD YOU I DIDN'T TAKE ANY BOOKS!!" "Back outside til you're ready to communicate appropriately." Chef stormed outside and started throwing pine cones at the house, repeatedly repeatedly repeatedly ringing the doorbell, repeatedly kicking the door, banging his head against the living room window and making faces at me then screaming when I would leave the living room, yelling that he was cold, etc., etc. Chef tantrummed for at least an hour and a half that time. Once he was able to be back inside, Chef stated that he'd been taking books on his way out the door to school in the morning and hiding them in his lunchbag. Most mornings, Chef runs out the door at the last minute, and I am at the door with him then watching him from the front window til the bus arrives. Lately, however, I have not been right at the door when he comes in after school. The bookcase is right by the door and Chef wouldn't be hard-pressed to be able to slip out a book and stash it in the closet to take somewhere later on. If I am downstairs when Chef comes home, he does a personal check before going upstairs (he usually goes upstairs for a rest after school); if I am upstairs when Chef comes home, he does a personal check when he gets upstairs. We've stopped doing checks for each time Chef goes upstairs otherwise, but it seems to be time to start doing that again. Chef says sometimes he'll say he's going to clean the front entrance (about 5'x5') then hide something in the closet or in his niece's stroller then take it upstairs or stash it outside later.

Chef didn't bring up his laundry from the dryer yesterday. This morning he said he doesn't know where any of his socks are that were just purchased last weekend; I know they were in the hamper, but Chef said they weren't in the laundry room when he took the hamper downstairs. His runners had needed washing on the weekend and he was reminded three times in less than half an hour to put his runners into the washer. That didn't happen; he washed them outside instead. I asked him if he'd forgotten that he's tried that before and it doesn't work. He did work on his lunches last night without issue and actually agreed to take more in his lunches, including a dessert I made for him! This is highly unusual. I'm very thankful he was at that point yesterday. This morning, I packed his lunch into a large, clear tupperware container so it's easy for his school support staff to see what's inside with hopes that it will minimize some of Chef's stealing/stashing attempts. When the bus pulled up, Chef had only been starting to get ready the last few minutes beforehand and was not at all ready to go - though he had actually eaten part of a breakfast! He walked out to the bus barefoot, wearing pyjamas, carrying sandals, his lunch, his jacket (the one that he's kept in the storage room since I bought it for him in summer; it finally got promoted to being brought upstairs and being used!) and a wrinkled outfit he'd pulled out of the dryer. He didn't give his lunch to the driver, and often hasn't been, which usually translates into him eating it on the bus.

I'm a little tuckered out today; actually, a little more than a little.

4am Mornings = Not Fun for Anyone

Thursday, October 28, 2010

Chef has been up the past few mornings around 4am to use the washroom. I'm not sure if he's been going right back to bed or not, since I seem to drift in and out of sleep and then feel the need to get up and check to make sure he's back in his room.

On Tuesday, Chef had stayed home from school because he hadn't been feeling well. I'm not sure if he's come down with a cold or if his bedroom is causing him some problems with his sinuses, but on Monday night he asked if he could have a homeschool day on Tuesday. I told him that we could gladly do a homeschool day but those days have to be planned at least a few days beforehand. "Oh," Chef said, "because I'm not feeling very good." We later agreed that we'd see how he was feeling in the morning and if he still wasn't feeling great then he'd stay home for a sick day, then talked a bit about the difference between a homeschool day and a sick day. The next morning, Chef was up just before 4 and was sneezing off and on til about 8:00. I'd turned off the usual 7:30 alarm, but Chef came out of his room at 8 and said he had to get ready for school then started doing exercises. I reminded him that he was just staying home because he was sick, and that he needed to go back to bed. Around 11'ish, Chef came out again but this time said he REALLY needed to get ready for school. He still sounded snuffly. I reminded him again that he was sick and needed to rest so he could get better. Chef said he needed to be at school by lunch. When I asked him why, he said he thought he might have a test. I explored this a bit more with Chef then told him to just go and rest. I had a sense that he was in a rush to get to school for lunch because he knew he'd be missing out on other students' treats at lunchtime. I could be wrong. It's happened before. At noon, Chef told me again that he was feeling fine. He spent the afternoon at home with his sister and niece, and that evening he "redid" the dishes from last week that he said were clean though they weren't (we'd had a respite weekend, so Thursdays dishes were checked after Chef went to bed on Thursday then Chef was away til Monday evening).

This morning I told Chef he could go downstairs on his own and I'd be down in a minute. It was probably closer to three minutes. Chef said, "Ok, I'm going to make some cornmeal." When I went into the kitchen, there was water on the floor by the fridge. Chef said he didn't know what it was from. I opened the fridge door and noticed the lid on a casserole dish wasn't sitting well on the casserole dish, and figured the puddle on the floor was likely condensation from the wet lid. I debated whether or not to ask Chef or just point out the obvious situation. He's been in fairly good space and he's been occasionally starting to own up to things without lying first, then acknowledging that he feels better when he deals with things honestly like that, so I decided there might be an opportunity for Chef to be open about what he'd done so he'd get that feel-good. I asked Chef what he'd been doing in the kitchen so far. He said he'd gotten out his lunch, so I asked him what else he'd been doing in the kitchen. His immediate response of "That's all I was doing" came with whining and the ol' teenager "you don't believe me??" body language. I told him he needed to go find his honesty and appropriate ways of talking then talk to me. Chef went outside and did some jumping jacks then came in and repeated the same scenario. Back outside again. When he came in this time, he made a "grumpy and/or angry" face and stated that he'd grabbed some of the casserole out of the dish and eaten it while getting his lunch out of the fridge. When I reminded him that it would have been better to have breakfast and that there are appropriate ways to access food, he appeared even more indignant, looked like he was about to yell and started to say something but I quickly put my fingers to his lips to close them so he wouldn't wake his niece. Chef immediately started twisting his head and almost lost his balance. After removing my fingers, I asked Chef what the appropriate ways are to get food other than sneaking/grabbing food and stuffing into his mouth. "To ask or to eat at the table" was the grumpy reply. "Ok, did it work to lie and get angry with me over it?" "No," came the grumped reply. "Did it work to use up morning time that you needed to use for getting ready for school?" "No." Chef then started pushing his lip around with his hand. When I asked what he was doing, he said his lip hurt. I told him that it would definitely hurt doing what he was doing, and that if his lip hurt it would be better to put something cold on it. I had a look at his lip, saw nothing, got out a bag of frozen vegetables and put it to Chef's lip. He made an angry face and said his lip didn't hurt, but I wasn't sure if he was just saying that because he didn't like the cold. I told him that if it hurt, the cold would help and that it would be good to have it on there for a few seconds, and if it didn't hurt, then we didn't need the drama. Chef pulled away from the bag and walked over to the counter to get his lunch. I put the frozen vegetables back into the freezer and reminded Chef that he needed to quickly put away dishes from last night (usually not a morning requirement at all but I'm having someone over today and we're using the kitchen, and there were issues with dishes last night) and that he needed to hurry because he was running late. Chef did put the dishes away very quickly then slowly started picking up his lunch items. I asked him where his clothes were and he pointed to the bathroom and said they were in there. I reminded him that he needed to quickly get dressed because his bus would be coming and he still needed to add more food to his lunchbag. Chef started spooning some sauerkraut into a lunch container. And then - the bus came. When I told Chef the bus was here, Chef walked to the bathroom while I hurried to the front door and opened it. I'm having someone over today and sure didn't want the bus leaving and Chef staying home for the day! Chef walked out the door barefoot, in his pyjamas, carrying his clothes and his lunchbag. I reminded him he couldn't be outside barefoot - another eyeroll from Chef, but he stopped, put on his shoes, and went to the bus.

Today's lesson? Even though Chef doesn't have a problem with it on occasional weekends, don't suddenly change up the school morning by telling Chef he can be downstairs on his own for a bit before school, especially when he's been waking early! And mornings aren't the time for "feel-good" opportunities around food-sneaking!

Last night while dishwashing was taking forever because the dishes were being declared as "done" but showed evidence of not having been washed and had to be "re"washed, I considered setting up my camera to record on the kitchen table. I'd done this once in the past and thought I was being fairly brilliant with the idea. However, while the camera was calmly recording the kitchen happenings, I was nervous about leaving my camera there on its own for fear it might be "accidentally bumped" or encounter some similar fate; the concern was outweighing the benefits of recording. I also had absolutely no desire to sit and watch an evening of dragged-out dishwashing after Chef had gone to bed that evening. So last night I decided instead to check in occasionally by watching the reflection of the kitchen in a glassed picture frame in our living room. I've also done this in the past. I turned up the tv volume a bit then walked to where I could see the reflection. Chef didn't seem to notice whatsoever, and what I saw confirmed some of my wonderings. Chef wasn't actually washing dishes, but was doing the "dip, dip, and drainer" move or occasionally giving a dish one swipe with the dishcloth. I then stepped into the kitchen to watch. Chef glanced from the corner of his eye, continued singing, and started using the dishcloth to scrub all parts of the bowl in his hand. Aha! This provided reassurance for me in two areas. First, Chef is indeed still able to wash the dishes and still knows how to do so even on evenings when it is questionable as to why dishwashing is taking so long. Secondly, Chef wants to do what is right and is capable of doing what is right as long as he knows someone is with him or watching him. The latter might be a bit of a stretch seeing that the reassurance was coming from observing dishwashing, but it does seem to follow in pretty well every area of Chef's life. If someone is with him or he knows someone is watching him, he will almost always make good choices.

Dishes and 4am's and this morning aside, Chef seems to be in good spirits. He is taking responsibility for correcting himself when necessary, is generally accepting boundaries at home, and has generally just been pleasant to live with this week. He's been bringing artwork home and seems to be waiting for his hug when he hands me a painting or drawing. On Tuesday afternoon he just about bowled me over when he hugged me unexpectedly as I walked in the door from grocery shopping. Yesterday, he asked if he could give me a hug and actually snuggled in and gave a great squeeze with his arms. Very cool. And last weekend while packing for respite, Chef independently without any prompting at all announced that he needed to pack books because he gets bored of just playing video games and watching tv. And then he packed books! And his respite provider said he did a lot of reading over the weekend. This makes me smile.

A Lovely Time Was Had By All

October 21, 2010

We've had a very nice evening.

Chef came home from school, gave me a picture he'd coloured at school, accepted a hug from me, and went to his room for a rest.

When he got up, he threw his laundry into the washer, asked if he could make supper while he was waiting for teatowels that were in the washer, and cooked a lovely supper of pasta with fried ground turkey and fried onions with tomato sauce. After supper, Chef did the dishes (I haven't checked them yet, but Chef had worked quickly and without issue), made popcorn, cleaned the downstairs bathroom and the upstairs bathroom, finished his laundry, made his bed (bottom sheet, top sheet, blanket!) had a bath (first bath in weeks, though did have a shower on his last respite weekend) and changed into pyjamas (first time in two weeks). Chef visited with his baby niece while we watched a video together, then he brushed his teeth, said goodnight, and went to bed.

There were only a couple of prompts throughout the entire evening; twice, Chef came into the living room and was getting ready to relax for the evening and I asked if he was finished everything he needed to finish. Chef normally would only have one chore in the evening plus a weekend chore, but he hasn't really been doing any of his chores for weeks and he knows he needs to do them before having free time. After each of the two times when I asked him if he was finished everything he needed to finish, he took some time to think about it then independently continued on with what he needed to do without any further prompting.

There had been talk at one point about the possibility of going out to see a movie but that hadn't been til after Chef was already on a roll with his chores.

We've had a very nice evening.

Hugs and Food and Foster Care

October 20, 2010

We've had a nice evening.

When Chef came home, he handed me a card he'd made for me at school. This is the third piece of art he's given me since school started. I told Chef that I felt like giving him a hug, and I know he doesn't like hugging but I wanted him to know that I felt like giving him one. Chef looked down at the floor and said, "Oh." I asked why he was looking down at the floor, and Chef said that he likes hugs. Well, this was news! There have been many "issues" with hugging over the years and Chef has stated that he isn't comfortable with hugs. When I said I was surprised to hear he likes hugs because he's said and shown that he doesn't like them, Chef said he doesn't remember saying he doesn't like hugs and stated again that he likes them. Well, well! Hugs it is then!

Chef had his usual rest when he got home from school, then immediately worked on dishes. He and I talked for a bit before supper. I told him I'd been hearing that he has the possibility of foster care on his mind, and that he seems to think that if he's in foster care he wouldn't have to do any chores - two people told me that today, so I decided I didn't need to discuss specific names with Chef and that it was enough to say that I'd been hearing it from folks. Chef's initial response was, "Yeah, I said that a long time ago when I was angry because I didn't want to do chores." When I said that I'd heard it recently, he said that he hadn't said it recently, then repeated that he'd said it a long time ago when he was angry because he hadn't wanted to do chores. I said I wondered if there were any other reasons he might have talked about foster care. Chef said, "Just chores cuz I didn't want to do them. And I wanted some new stuff." "New stuff?" "Yeah, sometimes kids get new stuff if they're in a foster home and maybe I'd get some new stuff." "Or you could go through the appropriate steps at home and use allowance to get new stuff, or take care of things so people want to buy you new stuff, or behave appropriately so you don't miss out on opportunities where you could get new stuff." Chef nodded, then repeated that he'd said that a long time ago when he was angry about chores. I asked Chef if he felt like I might place him in foster care. "No, I don't think so. You did that one time, I think, but that was a long time ago." We talked about some of his experiences in that foster home (I'd placed him for a short time when he was in grade 5 because I was exhausted from not sleeping at night after discovering Chef had been climbing out his bedroom window to get candy from the corner store), and I was shocked when Chef started talking about chores. In the past, he'd said he hadn't had to do chores there. Tonight he said everyone had to take turns cleaning up different parts of the kitchen after supper and no one had to clean up the whole kitchen and no one ever had to do any other chores. So I explored that with him. As I asked questions, Chef seemed surprised to realize that the other/older foster children (in jr high, according to Chef, when Chef was in grade 5) in that home were actually doing supper dishes for six people compared to him doing supper dishes for two. He'd apparently been focusing on the fact that the kitchen chores in the foster home had been divided among 4 children (dishes for family of 6 plus bigger kitchen), whereas his kitchen chore involves the dishes plus wiping the counters/stovetop plus sweeping (dishes for family of 2, tiny kitchen). Chef then pointed out that no one there had to do any other chores. I asked if they had to keep their rooms reasonable. "Well, yeah, but that's it other than helping in the kitchen." "Did they have to get up in the morning and wash up?" "Yeah." "Were they expected to wear clean clothes?" "I don't know." "Hmmm, so you're thinking they had it easier because the kitchen chores were divided up, even though they had to clean up after more people, and they didn't have another chore to do on the weekend?" We talked a bit more then had supper.

Chef worked on dishes again after supper and was done in half an hour. Unfortunately, about a sinkload needed to be "re"washed, and there weren't any clean teatowels available; some had been tucked away in different places in the kitchen closet and hadn't make it into the laundry, so the rewash will need to wait til tomorrow.

Food: At supper tonight, I asked Chef if he could get out a leftover meatball that was in the fridge. Chef initially said, "OK" and went to the fridge - then he stopped, looked at me, and said "I ate it last night." "Oh. I didn't see you eating it in the kitchen or living room or anywhere." "That's cuz I snucked it." Honesty! No games, no lying ad nauseam. Honesty! I told him to go think about the appropriate ways of having food and gave him kudos for being honest about sneaking. After finishing his supper tonight, Chef asked if he could have an orange! I'd just bought a box of Christmas oranges that was on sale, and I knew I'd be having one later in the evening and figured Chef would want one then as well, so we talked about some other options and I told him he could have baby carrots for now then have an orange with his popcorn during his free time once he was finished his dishes. He ate the carrots, then worked on dishes - see above. He started popping popcorn and peeling an orange, but was reminded that free time comes after dishes and dishes hadn't been checked. Chef accepted that. I went into the kitchen to check the dishes and discovered the popcorn popper was sitting in a puddle of water beside the sink; plugged in and turned on. After removing it and drying it off, I reminded Chef of the importance of not having appliances in water and not having water all over the counters. Chef cleaned up the water, said that he would get his laundry done tomorrow so he could finish dishes, brushed his teeth, said goodnight, and went up to his room in good space.

Tantrum

Thursday, October 7, 2010

It is the Thursday before Thanksgiving. Traditionally, Chef has often not done well with any kind of holiday/celebration. It's yet another change in routine, it's still the beginning of a new school year, he asks almost every day whether or not my daughter and granddaughter are going to be at our place or not and where they are. There always seems to be so much running under the surface for Chef.

On our way to the store today, Chef looked at me and said, "Oh, I have something for you. It's a hug. I haven't given you one in awhile." Then he hugged me.

Wow! THAT is a rarity.

While we were at the store, Chef talked about some things he'd like us to make on the weekend. Fantastic! Chef doesn't usually initiate conversations like that, plus there were some "planning ahead" pieces in that statement! Some of the items required flour. When I reminded Chef that some of those items might have to wait because he'd recently eaten the rice/potato flour, he said, "Ok." I asked him how he'd managed to eat flour just on its own and he said he hadn't - he'd mixed it with vanilla.

Chef had a good evening tonight. We ate supper around 6:30pm, he tossed in his laundry, did some dishes, talked about the painting he'd brought home for me yesterday, we talked about weekend possibilities - all in all, a really nice evening.

And then I saw it.

A link of sausage (about a foot long) from the freezer had found its way to the railing going upstairs. I commented that that looked odd and asked Chef what his plan had been.

"To eat it," he said.
"Is sneaking raw meat from the freezer and putting it in the railing the appropriate way to get food?"
"No."
"What would have been better?"
"To eat something else."
"And sneak it?"
"No. But the package says it's been cooked."
"Does that make it appropriate to take it from the freezer and try to sneak it upstairs?"
"No! But I was hungry!"
"We had supper not long ago. If you were still hungry wouldn't it be better to have more supper or to have an appropriate snack?"
"I want the sausage!!"

Chef's eyebrows went down. His arms crossed. His voice raised. And Chef was reminded that he could either take some time outside to calm down or show that he could be respectful inside. Chef slammed out the door. He had taken his dresser drawers outside awhile back because he had never used them as drawers (except for a few puzzle pieces in one and food hidden under some fabric in another) but was frequently opening then slamming them when something wasn't going his way. He and I had talked about using the drawers for plants on our deck next year. Tonight, 4 out of 6 of them were destroyed. Chef started by banging them up against the house and the door, then started taking them apart and using the wood to hack apart the other drawers. I found it interesting that when I came out to give him his med, he stopped what he was doing, opened his mouth for the med, swallowed, then opened his mouth again to show me he'd swallowed. When I turned and went back into the house, Chef went back to grumping, banging on the house, and destroying the drawers. I called the local crisis unit to have someone on the phone while this was happening. We stayed on the phone while Chef finished with the drawers and agreed to clean up the mess and use his tools (usually exercising, especially if he is outside; inside tools also include reading, art, etc.) to deal with his frustration/tantrumming. When I got off the phone, Chef came running in the house screaming that he couldn't stay outside because there was something scary, then pointed to a tiny kitten on the lawn. Chef has never shown any fear of kittens. I asked if the kitten had surprised him and he said, "Yes, and it shouldn't have done that! I can't be outside with a kitten!" I picked up the kitten. Chef continued his tantrumming and yelled that he wanted to come inside. I reminded Chef that I hadn't seen a turn-around yet and needed to see him put some effort into dealing with his tantrumming. Chef walked away, turned around, folded his arms across his chest, and made a face at me. I closed the door. Chef started kicking/banging against the house and the door, and ringing the doorbell repeatedly and swearing. I took the kitten to our back door and gave it some food on our deck, thinking it might stay there for a bit, then I went back into the house. Chef was still tantrumming out front though he would occasionally pause to stare at the house with arms folded across his chest and an angry expression on his face, but would then go back to the tantrum. He even spent time playing with the kitten, who'd returned to the front yard, and would then go back to tantrumming. I called the police so he would receive the message from someone else that it wasn't ok to do what he was doing. The neighbours also came out and talked with Chef, but he'd initially continued on with the banging/kicking/swearing until I came out and said that I'd call the police. Chef stopped immediately and leaned quietly against the wall with his hands folded in front of him. The police came, talked with him, laughed with him, did a few jumping jacks with him, had him apologize, offered him their business card, and told him to listen to his mom. After they left, Chef and I went into the house and Chef immediately started to say something to me using disrespectful tone but I interrupted him and told him he had a choice of starting all over again by taking it outside to deal with it or turning things around immediately. He then rolled his eyes and started to try to argue. I told him that the message he was giving me was that he wasn't yet finished tantrumming and asked if that was the message he wanted to give.
"No," was the reply. By now it was after 10pm (I'd found the sausage around 8'ish). I said goodnight to him and Chef stomped into his room. I called him and asked him again if he still had some frustration to deal with because that was the message he was giving by stomping away and not responding. He started to roll his eyes and I told him to look at my eyes and take the time to find his calm. I haven't done that in ages and wasn't sure if it would still be beneficial - but Chef's eyes met mine and there was a moment of quiet. I then repeated, "Goodnight, Sweetie. Hope you have a good sleep," and Chef calmly said goodnight and went to bed.

I was just telling someone this afternoon that Chef has come such a long way in his life, and that a lot of his attachment difficulties have been healing (not healed, but healing!) over the years. This evening's trigger was very obviously one that is not historically unfamiliar - when Chef has tried to sneak an item into his room or the bathroom and the item is discovered before he can eat it or use it, he becomes furious. I had discovered the length of sausage before it had made it into his room and before he had a chance to eat it.

Tomorrow I'm going to start a combination of support strategies regarding food and see if a combination might be more beneficial for Chef.

"Morning After Respite" and "Food"

Chef came home from respite this morning to get his lunch about 15 minutes before his bus would arrive.

When he walked in the front door, he had some difficulty maneuvering around his "stuff" he's been piling for a few days in the front entrance - there were about 6 small items in total that were supposed to be for the outside garbage bin and a small plastic bag for the thrift shop. It was a small pile, but a pile nonetheless, and certainly didn't belong in the front entrance where it would cause problems for Chef using the door. Natural consequences.

When reminded (again!) that the front entrance would be easier to use once the pile is cleared up, Chef chose to clear it up! He did so in three parts; two trips to the bin, then down the lane to the thrift shop with the small bag. Just before he returned, the school division called to say his bus wouldn't be running today due to a medical emergency. I told them I'd work on figuring out transportation and if I couldn't then I'd just keep Chef home. I made a couple plan changes, and was phoning the school when my neighbour rang our doorbell. This was all happening within the first 15 minutes of Chef arriving home. Not fun for me; that much more difficult for Chef. Ah, Monday mornings.

I noticed Chef was wearing a dirty, wrinkled shirt when he came home, so I asked him to change it before heading off to school. He made a face and told me it was clean. I pointed out where it was dirty. This was not received well - our short morning together had been very busy thus far. I told Chef to take a bit of time in his room to just relax and find his focus.

A few minutes later, I called Chef down to get his lunch from the counter and go out to the deck. I'd put everything out on the counter (apple,carrots, peppers, rice/beef casserole), he just needed to pack the items into his lunchbag. Instead, Chef opened the fridge. I pointed out that there were lunch items on the counter for him and that his lunchbag was still in the living room where he'd left it last week. He said, "Ok" and kept looking in the fridge. I told him there wasn't time for anything else and that he needed to get his lunch and go out to the deck. With eyebrows down, he got his lunch items together and carried them out the door.

I've often talked with Chef about preparing "dessert" items together, such as cream puffs or rice krispie cake to take in his lunches with the idea that he would have something right in his lunch that would be immediately available for him when he feels like seeking carb-type foods otherwise. I still think this would be a very beneficial idea for Chef's lunches, though his responses to this have been varied - usually he just doesn't want to make items on the weekends, the ingredients often disappear before the items are made, or the items I make disappear en masse, leaving nothing for lunches. When Chef was in his younger grades (and prior to going gluten-free!), the lunches I packed for him were so large that the top of the lunch bag couldn't fold over. In addition, he also had access to snacks that I brought to school for him on a weekly basis. Chef still secretly and successfully sought out food otherwise - food belonging to other students, staff, the food collection box in the hallway at Christmas, etc., etc. At one point, Chef also had open access to a snack shelf in his classroom; I don't recall if he ever accessed it at all, but he still sought out food otherwise. Food remains a very challenging area for Chef when he does not have an adult with him.

Respite Weekend

Last night after supper, Chef agreed that he needed to get his laundry done so he didn't have to worry about it the rest of the weekend, and said he would ask his sister for permission to go into the basement (because she is home and he has to walk through her room to get to the laundry room) as soon as she was finished with what she was doing. I told him that in the meantime I needed to chat with him. Our neighbour had told me that the last time Chef was at her place he was loudly and repeatedly passing wind and laughing. I reminded Chef that that isn't ok in our home and certainly not ok to do in the neighbours' home either. I told him he could go up to his room to think about that while waiting for his sister. I called him about three minutes later. No response. I called him again a couple of minutes later. Nothing. His sister finished what she was doing. After chatting with her a bit, I quickly ran an errand. I glanced up at Chef's window from outside and noticed his light was off. When I got home and peeked into Chef's room, he was sound asleep. I'd planned to talk with him about the weekend but sure wasn't about to wake him up to do so.

The weekend is a music and culture weekend event. Chef has previously attended, though has always participated very passively. One time, he did agree to attend a workshop on his own while I attended one (he has known most of the musicians for quite a few years, so he feels fairly comfortable around most of them). He was the only one in his workshop, so he had an hour of individual music instruction. That was awesome! With me being a musician, Chef has had much exposure to the music community, has attended many group performances, and has performed a few times with our group as well (including one time when he played part of a tune as a solo at a public indoor market and one time when he was even on stage with us at the Concert Hall). And though he's chosen to no longer play any instruments for the time being, he definitely still benefits from being at events. However, given the way things were around camping, and the cultural event in August, and him (suddenly not!) attending the music retreat in July, and the fact that Chef has often said to our neighbour, "I didn't want to go anyway" regarding music events, I chose to do this weekend on my own. Sometimes I feel like 24/7 staff whose only time off is when Chef is asleep or at school or with a respite provider. So even with recognizing all the social benefits and feel-goods this event may have provided for Chef - sometimes, I just need a break.

This morning, Chef independently started his day again with 20 minutes of exercising. Awesome! This was followed by much rushing-around-but-not-really-doing-anything. As of this morning, Chef has now agreed that he will go back to eating breakfasts that I make, so we will re-start that next week. I'm glad he has come to the point of recognizing that benefit.

Unfortunately, Chef was out and waiting for the bus before there was a pause for me to talk with him about the weekend (for those of you unfamiliar with Chef's challenges, there have been many times when I've started preparing Chef for something different a few days or more before the event, only to have Chef be all over the map for the entire time leading up to the event - it's always tricky trying to find that balance). When I told him I'd be going away and that he'd be at the neighbour's - he cried! This completely caught me off-guard. When I told him I was going for a music weekend (thinking he'd say he didn't want to go anyway), he continued to cry and said that he wanted to come. I was stunned. There wasn't much time before the bus. I asked if he'd put in his laundry so he had free time on the weekend, and regretted asking that question as soon as it was out of my mouth - as though he were missing the weekend away with me because he didn't do his laundry. I hugged him and told him there would be other music weekends together and that I hoped he'd have a great weekend. He dried his face and walked to the bus.

Balance

I've often said, if it weren't for times of issue around school (sensory stressors around bright lights and hallways and crowds and noise, etc., having to get ready in the morning, etc) and chores and lying and stealing and hygiene and responsibility, everything would be fine.

I'm sure many of us have seen someone walk in the door at the end of the day and dump their backpack on the floor or toss their briefcase onto a chair, then flop down on the couch with an exaggerated exhale and a non-relaxed look on their face. They've held it together all day through thick and thin, then they come home and need a place to just relax.

For Chef, frustrations and anxieties are almost always reserved just for home. This is where he can dump everything and know that he will be supported in continuing to learn to dump appropriately. Chef also knows that there is an expectation here for him to continue to learn to use the tools he's been given and trained to use when it comes to anger/stress management. And he also knows that he will be continue to be supported in continued learning and growing to become a contributing member of his family and community.

And unlike the person who can walk in their door and flop then exhale and vent a bit then move on with their evening, Chef's anxieties and frustrations are sometimes delayed or skewed and are communicated through other "behaviours" either in response to something or as a prelude to something he's anticipating.

Aside from all those times (which can sometimes take up the bulk of an entire day or evening or even weekend if there have been issues), Chef and I have a lot of nice moments (good talks while walking, "Mom, would you like some tea?", good talks when driving somewhere, enjoying nature walks, "Mom, there's something over here you could take a picture of", watching videos together, "Yes, Mom", etc., etc., etc.) When Chef is in good space and not in the midst of dealing with issues/behaviours/ consquences, etc., it really is very pleasant being Chef's Mom.