This blog was initially set up as a means of communicating with my son's team. Since then, I've heard from other parents with similar stories. If you are living with challenges or journeying alongside someone who is, you are not alone. There are many of us. I'm a single adoptive Mom (http://richesofsimplicity.blogspot.com/) of a young man who lives with many abilities and many diagnoses. We have journeyed together through many challenges and a few adventures over the years as my son has tried to find space in this world that makes him feel more comfortable, an attempt made especially difficult when living with Attachment Disorder, PDD-NOS (Autism), Developmental Coordination Disorder, ADHD, prenatal substance exposure, etc. Some of the strongest elements used in this journey have been music, visual arts, therapeutic parenting, team-connection, boundary-setting, boundary-setting, boundary-setting, communication skills, community-building, continual lifeskills training, and elements of Theraplay. (Click here for some written resources.) On this journey, there is laughter and tears and growth and hope. The greatest of these is hope.

Showing posts with label mornings. Show all posts
Showing posts with label mornings. Show all posts

Thursday, June 9, 2011

Lunch at Last!

June 9, 2011

Morning:

Chef took his lunch to school! And an entire lunch at that - stew, a mango, a grapefruit. He also picked up a loaf of bread and had intended to take that as well then put it down when he was reminded to take only some of the loaf and to wrap it or put it in a container.

I asked Chef why he hadn't changed his shirt yet this week. "Because I didn't have a bath last night." The schoolbus was already waiting, so I didn't continue the conversation at that point but I'll be exploring that statement with Chef tonight to find out what he meant. Maybe Chef's understanding of putting on a clean shirt after having a bath means the ONLY time you put on a clean shirt is after having a bath. Hmmm.

Partway through the morning I received a text from Chef's EA asking about Chef's glasses because Chef had told his EA that I wouldn't let him have them. I have two thoughts on this - either he's doing his usual and blaming me for his actions and/or choices OR he's confusing the conversations regarding his old glasses, which are to now stay home (though he knows his new glasses are to be at school and he's had numerous reminders to take them there).

This weekend a friend has offered to take us along for a tour of various artists' studios. As often happens regarding such events, I'm torn. As Chef's Mom, I know this would be a beneficial opportunity for him and would create some positive memories in his life. But also as Chef's Mom, it sure would be nice to have some time alone with friends and just focus on myself for a change during an event...shockingly, even with the way Chef has behaved her lately, my neighbour has offered to take Chef for the day so I could have the day to myself. The catch is, that as relaxing as that sounds, I have a sense that I'd be waiting all day for the phonecall saying Chef had run off from her place or was causing problems for her, and that I'd be dealing with his anger all the next day. On the other hand, there is never a guarantee that Chef will go along somewhere. The only thing for certain right now is that I won't be telling Chef anything until Friday evening or possibly Saturday morning because there's always a strong risk that Chef will "act out" if he knows in advance that we're going somewhere new or there's a change in his general routine. Right now, though, I'm definitely leaning towards bringing him along on the studio tour and hoping that the memories from that day will make it all worthwhile.

I've been looking for volunteers for this summer; folks who would be willing to commit to spending at least one hour a week with Chef to take him to the park or swimming, etc. I've put a request on Facebook and have sent emails to the local colleges. My hope is that having different people doing different activities with him throughout the summer would help Chef continue to grow in his social skills and accept a broader variety of people in his life, as well as provide a bit of respite time. It would definitely be of benefit to students who are studying in certain fields, and volunteer opportunities are always good for community-building. We sure haven't had much success in finding individuals to work with Chef otherwise, but I'm hoping that an hour a week will be do-able for some folks who are community-minded.

Wednesday, June 8, 2011

Morning Brain

June 8, 2011

Today was Day #3 of Chef going to school without his lunch. He's back to waiting til the very last minute to get ready for the bus regardless of how much or how little time he has in the morning. He has lunch servings of one of his favourite stews frozen in the kitchen freezer and there are baskets of fruit on the table/counter. There are days when I've even removed the stew from the freezer and set it out with fruit for him to pick up and reminded him to take his lunch - and yet it is still sitting in the same place as he makes his mad dash out the door once the bus arrives. (There are many times that Chef does bring his lunch. In fact, there are many times that Chef prepares his own lunches AND brings them to school. Other times - well, not so much. Lately, the most consistency there's been with lunches going out the door and breakfast being eaten has been on mornings when I have put Chef's lunch and a portable breakfast item outside for Chef. And while that "works" as far as ensuring he's getting food into his belly, it doesn't work when it comes to supporting independence.) When I've asked what he's been eating for lunch, he says he hasn't been eating anything but his school staff has told me other times that when Chef doesn't bring his lunch, other kids share with him. This is the first year when that's been ok with a school - this is also the first year that Chef hasn't been sneaking food from other students' lunches regardless of whether or not he has his own lunch. This morning, Chef grabbed a mango and an orange on his way out the door.

During the past weekend, Chef found his new glasses that he'd misplaced shortly after receiving them. They look so nice on him! I reminded him to bring his broken glasses home from school on Monday so he could trade and have his broken glasses at home and his nice new ones at school. Chef did great - brought his old glasses home on Monday! His new glasses, however, continue to sit in the front hallway about 3-4 feet from the door. I asked him again this evening how things are going at school without glasses (terribly!) and reminded him again that he needs to bring his glasses to school.

We had an incredible storm last night, complete with lightning, hail, and very loud thunder. Chef and I were out chatting with a neighbour earlier this evening and she asked Chef if the storm had woken him. Chef shrugged and said he'd slept through it. I smiled and reminded Chef that it wasn't long ago when a storm like that would have had him screaming and panicking.

It's definitely nice to look back and see so much growth over the years.

Wednesday, November 3, 2010

That Good Ol' Swinging Pendulum

Wednesday, November 3, 2010

This morning, Chef independently got up when the alarm went off the first time, independently did 25(!) minutes of exercise, came downstairs and independently got out his breakfast(!) AND ate it(!), independently got his lunch items together and packed them into his lunchbox AND said he was going to make popcorn to bring along then made the popcorn(!), and only needed prompting during the last few minutes before it was time to leave because he wasn't yet washed or dressed for school.

Wow! This has been a rare and very appreciated morning.

As an aside, Chef asked the other day if people are reading my blogs and I told him that there are readers from a lot of different places. I told him someone from a place called Oman had read the blog, and that I had never heard of Oman and wasn't sure if I was remembering the name of the place correctly. "Oh yeah," Chef replied. "There's a place called Oman. It's on my map."

Tuesday, November 2, 2010

And Then What Happened?

Tuesday, November 2, 2010

We have had two fairly blissful evenings in our home.

Chef has been respectful, pleasant, and enjoyable. He's been smiling and independently interacting with me, his sister, and his niece. He's been independently and sporadically talking about his day. He's been doing his chores quickly and with positive attitude, and has left himself free time in the evenings! He also made supper last night, and prepared potatoes for tonight's supper.

Tonight we watched "The Soloist." I didn't realize there would be such a strong focus on mental illness. Chef and I had quite a few brief conversations during the movie, and will need to revisit some of them.

Mornings remain about the same when it comes to the actual "getting ready to leave" parts, but I have to say that I remain completely amazed that Chef starts his mornings by independently doing exercises. He also ate part of his breakfast again this morning (two mornings in a row!), and again took a better-sized lunch than he had been taking last week (again, two mornings in a row!), including food that I've prepared for him (which has frequently been a pretty big issue!)

For this I am truly thankful.