This blog was initially set up as a means of communicating with my son's team. Since then, I've heard from other parents with similar stories. If you are living with challenges or journeying alongside someone who is, you are not alone. There are many of us. I'm a single adoptive Mom (http://richesofsimplicity.blogspot.com/) of a young man who lives with many abilities and many diagnoses. We have journeyed together through many challenges and a few adventures over the years as my son has tried to find space in this world that makes him feel more comfortable, an attempt made especially difficult when living with Attachment Disorder, PDD-NOS (Autism), Developmental Coordination Disorder, ADHD, prenatal substance exposure, etc. Some of the strongest elements used in this journey have been music, visual arts, therapeutic parenting, team-connection, boundary-setting, boundary-setting, boundary-setting, communication skills, community-building, continual lifeskills training, and elements of Theraplay. (Click here for some written resources.) On this journey, there is laughter and tears and growth and hope. The greatest of these is hope.

Showing posts with label prenatal drug exposure. Show all posts
Showing posts with label prenatal drug exposure. Show all posts

Monday, July 11, 2011

Downtime, Decks, and Toga Days

July 11, 2011

The retreat. The music retreat. Where do I begin?

There's so much to tell because Chef did so exceptionally well the entire time!

And the day after the retreat, he came along on a day trip with a friend and me, followed by a day of absolutely nothing except life basics, followed by making crafts for his first volunteer shift at the local arts center. A year ago, I never would have imagined Chef accomplishing what he's accomplished in the past week.

I've decided to separate "The Retreat" from today's post. It really does need its own celebratory space.

And so, on to today....

Today is Day #2 of Chef sitting in his room wrapped in a sheet that has definitely seen better days. In my ongoing attempt at minimizing, I decided about a month ago that I don't need all the sets of sheets I've received over the years, so I passed along a nice, new'ish set to Chef. I figured a high thread count would enhance its longevity. Fast forward a few weeks and you'll find the bottom sheet no longer in existence and the top sheet is now torn along the edges with various holes here and there, and spotted with fingerprint-shaped bloodstains from picked/dabbed scabs. Apparently this is the stuff of which togas are made.

The most recent TogaDays started a few days ago if we include the lead-up days. Chef was reminded to toss in his load of laundry on Wednesday evening once we returned from retreat. He was reminded again on Thursday and again on Friday. On Saturday morning when Chef came downstairs to play with his niece who'd arrived for the day, he went down to put his laundry in the dryer then said he would finish on Sunday. I asked him how his clothes would look if he kept them in the dryer overnight. "Not good. But I don't want to do chores, it's holidays." "You've been on holidays for over a week without chores and you need clean clothes." "K." But it wasn't ok. Chores were avoided at all cost and we shifted into "no fun for Chef til his clothes are done and dishes are finished" mode. By yesterday, Chef had completely run out of clothes and decided this meant a day off to just hang out in his room. This created two self-confessed dilemmas for Chef: hunger and boredom. Togas are not welcomed mealtime attire in my home. This means that Chef needed to get his clothes, get dressed, and be ready to eat at mealtimes. Chef chose otherwise and was given a snack in the afternoon and another in the evening. We talked about what had "worked" and what hadn't "worked" and what would have "worked" and about Chef's plan for the next day. I went downstairs to water plants and discovered little white clumps/spots all over the deck. Baking soda. Chef was not impressed with having to come downstairs in his toga to clean up his mess on the deck.

Today was a rerun of yesterday until 1pm when I told Chef that he needed to go outside and get back into his exercise program and get his day going. Chef grumped down the stairs and out to the deck, tucked his elbows against his body and limply flapped his hands while bouncing a couple of times. He then came to the window and grumpily asked if he could come inside. I told him he could gladly come inside once his attitude shifted, and reminded him (again!) that he needed to cover his private areas. This was met with two stomping, partial jumping jacks and a grumpier return to the window. I told him if having the window open was going to be too difficult for him to focus on finding his good space, I could easily close it. Chef crossed his arms across his chest and scowled at me. I closed the window and walked away. Chef bumped his head against the screen, scowling into the kitchen. I closed the blind. Shortly thereafter, Chef was engaged in getting his exercise going. I went out to the deck with my guitar and strummed quietly. One of neighbours came by and said she was concerned because she's been seeing Chef leaning far out of his bedroom window. She also wondered why there were little clumps of "white stuff" all over their deck and the yard between our deck and her's. I glanced over at Chef with raised eyebrows. Chef scowled and said "I didn't.." but I interrupted him by putting my hand up and saying, "Stop. You need to go over immediately and clean the neighbours' deck." Chef stomped over to the neighbours'. The neighbour kept repeating, "It's ok, I cleaned most of it up. I just don't want him doing that anymore. And how did he throw it so far?" I told her my guess was that he'd probably mixed it with water to clump it together (interestingly, Chef had told me he couldn't do any chores on the weekend because he didn't know where the baking soda was) and told her that Chef still needed to clean her deck off as part of the message that this was not appropriate for him to do. The neighbour then told Chef that the next time he throws anything onto her deck she would be calling the police. I agreed with her decision. We tried talking with Chef about safety concerns regarding leaning out the window but he was in "scowl and ignore" mode, though he was doing a good job of cleaning up what was left of his mess. I decided it might be a good time to call in a male member of Chef's support network so Chef would have the same message from other supportive individuals other than just his mom (that would be me, the exterior brain that Chef accesses to help him get back to a reasonable space of life when he isn't coping well, aka the target of Chef's anger/frustrations/fear/worry/etc when he makes decisions that don't work for him and/or gets caught in his bad choices) and his female neighbour (who used to be his primary respite provider and now receives disrespect from Chef, though not always). Thankfully, I was able to get a hold of one such individual and he came down and talked with Chef about wanting to take him to hockey games next season, and the importance of dressing appropriately, the importance of safety, the necessity of chores, etc. He also pointed out to Chef that it would be good for him to apologize to the neighbours. Chef replied that he had already apologized but accepted Ed's comment that it would be good to apologize again. I sent Chef back over to finish cleaning up at the neighbours' then we went inside. Chef immediately went to finish his laundry. He then did most of the dishes, lied about cleaning up his messes he'd made on the floor then went back and cleaned them up, then announced that he was cleaning the bathrooms as well. I placed a few calls to other members of Chef's team with regards to the best way(s) to address safety concerns about the window. Presently, Chef still hasn't yet brought a clean sheet/blanket upstairs to his bedroom, but his clothing is clean and dry and hanging in the closet. Chef's had supper, has bathed and is wearing clean nightwear, and is singing in his room - near his door, so I know he isn't leaning out the window.

Tomorrow is Day #2 of Chef's volunteer position at the local arts center. He'll be helping with the little ones at their day camp.

So, we made it. Phew! A bit of grumping, a bit of on-strike, a bit of throwing (there are definitely much-worse things to throw than baking soda!)....but I'm thinking this might have all escalated into full-blown tantrum a year ago. Growth is such a good thing.

Sunday, December 5, 2010

December 5, 2010

Part B

There wasn't a sound from Chef's room until around 9:30 this morning. A few minutes later, I was in the washroom and heard Chef's door open then close. I left the washroom quietly and peeked in his room. No Chef. I walked downstairs and saw him quickly disappearing around a corner. I walked through the kitchen and into the living to find Chef just starting to duck down between the china cabinet and loveseat. He was wearing only socks and had a blanket wrapped around him (he has gone through/gotten rid of numerous pairs of pajamas). I told him to go back up to his room, followed him upstairs, and told him to get dressed. A few minutes later, I told him it was time for a room check because I didn't know if he'd been sneaking downstairs other times during the night. He made an angry face and grumped at me. I reminded him that he was the one who was breaking rules and when he gets caught breaking a rule, it is not ok to take that out on someone else. He grumped again. I told him he could fix his grump or take it outside. He went outside and immediately did some jumping jacks and I called him in a couple of minutes later after I'd checked his room. There were the usual disturbing items but nothing out of the ordinary. Chef came inside in good space. I asked him to return to his room and to sing so I would know that he was in his room. He is presently singing in his room without issue while I'm doing up this morning's blog entry.

It would be great if Chef participates in school-lunch prep today. He hasn't at all for the past few weekends. When he doesn't participate at all, I don't either. That leaves Chef having to prepare his school lunch the night before or in the mornings. He's been leaving it til mornings, then just grabbing an apple or an apple and some crackers or occasionally some leftovers. He hasn't had consistently good school lunches for two weeks now because of his weekend choices. I wonder if he's tired enough of that to make a change and do some lunch prep today.

***UPDATE: After a late lunch today, Chef shovelled the neighbours' front porch (very small) and made a pathway to the parking lot, then came in and independently made his school lunches without issue. He offered to make supper ("to help make up for how I acted today") and was reminded that he gladly could but he would still need to do weekend chores (two household chores - he is also technically supposed to be doing extra chores to pay back for stolen/damaged items, etc., but is behind just on his regular day-to-day stuff at this point). Chef cooked liver, mashed potatoes, and mixed vegetables for supper. It was great. When it was time for dishes, Chef moved very quickly and had the kitchen finished up in about 20 minutes. When I checked the dishes, they weren't clean (I don't mean in a "teenager not cleaning dishes" way or that there were a few missed spots, etc. There were lots of food bits, etc. ) It was great that the usual dragging out of the chore hadn't accompanied the "not cleaning" but it was very clear that Chef again hadn't made an effort to actually wash the dishes. There were no rags for Chef to clean the little washroom downstairs because he's gotten rid of the rags and we weren't over at the thrift shop so he could replace them because he was tantrumming on Saturday. It's all a chain. At this point, I really do believe that it is mostly all a ploy to do whatever it takes to get out of chores. I've suspected that over the years when it came to some things; as time goes on, I'm more convinced. I could be wrong. I realize chores involve a lot of steps and some planning, which is why Chef has written helps to use (which he doesn't use, but he no longer whines, etc., when reminded of using helps), but sneaking through the house to take stuff also requires steps and planning. Repeatedly throwing hard snow/ice at windows also requires steps and planning, evidenced by Chef taking the time to find the "right" pieces and tossing unworthy pieces onto the ground. Independently making his own school lunches requires far more steps and planning, yet Chef is very successful in that area when he makes his lunches on the weekends, and very successful when independently cooking meals otherwise as well.

And so, the chore saga continues...

December 5, 2010

Part A

The past few weekends have all had tantrums. Wait, there was one tantrum-free weekend that took place right after Chef's appointment with his mental health worker and "new" psychiatriast. Chef had stated after the appointment that he was embarassed by what had been discussed during the appointment. That weekend, there were no tantrums. There was the usual not wanting to do chores, etc., but no tantrums. That was new. Usually, after appointments in which concerns are discussed, Chef displays his feelings disrespectfully.

That was a few weekends ago, and there has been a tantrum every weekend since. All the tantrums have been chore/responsibility-related or stealing-related. Chef hates chores or anything that he deems to resemble a chore, and Chef becomes angry if something he has stolen has not been used by him prior to the item being discovered missing. Otherwise, things are going quite well. At this point, all tantrums are redirected to outside of our home because Chef has been destructive inside our home in the past.

Last weekend, we were enjoying a very pleasant weekend together - until around 1pm on Saturday when I discovered $20. was missing from my wallet(which I thought I had hidden well enough, but obviously hadn't). It was about four hours before Chef stopped behaving inappropriately and close to another hour before he admitted that he'd taken the money and hidden it. He tried explaining to me that he needs money to have like other kids. I agreed. I also reminded him that other kids don't spend weeks on end trying to avoid doing a chore, and that they do what they can to earn money rather than stealing it. I asked if he needed me to remind him of the allowance/money-earning system in our home. "No, it's ok," was the reply. On Sunday morning, Chef didn't come out of his room til just before noon and was still showing anger about the money. He was reminded that he could use his anger management tools/activities to help himself feel better and turn things around, or he could take himself outside. He stormed out of the house and started repeatedly kicking the door and ringing the doorbell and raging for just over an hour. Thankfully, the neighbour and I had already arranged for Chef to be at her place Sunday afternoon from 1pm til bedtime. When I opened the door and told Chef he could head over to the neighbours', he stopped, yelled that he was hungry, and that he didn't want to go to the neighbours' place. I agreed that I would be hungry too if I'd spent my lunchtime tanrumming instead of eating. A few minutes later he went over to the neighbours' house. A few days later, he told me he's never tantrumming again because he didn't like having to suddeny go to the neighbours' house. I didn't respond to the comment.

This past Thursday evening, Chef and I went with friends to a Christmas party at an art gallery. The staff were instructing folks on how to make origami ornaments to decorate the gallery's gigantic tree. Chef dove in with enthusiasm. Origami is one of his interests and he is very skilled at picking it up quickly. When he is shown something to make from paper, he will initially make quite a few. If he runs out of paper, he'll just rip some to the necessary sizes to make more. I've been amazed at how tiny some of his cranes have been. Once the novelty wears off, he doesn't do origami again until someone other than me does more and then he's back into making beautiful pieces again. On Thursday, Chef learned how to make an origami Christmas ball and an origami pop-star, and made quite a few for the gallery's tree then brought some home and has been making a few pop-stars since. When I encouraged him to show some of the folks at school how to make then, he said he wasn't going to show anyone at school. I have a sense we'll have a nice number of them to hang in our home for the season though.

On Friday, Chef informed me that there were no rags (again) to do any chores, and he'd already taken close to an hour in the kitchen without having actually washed any dishes. I hadn't been feeling well since Thursday night, and just sent Chef to bed early on Friday. Chef was up at 6am doing exercises on Saturday morning. From my room, I called to Chef to go back in his room til later because it was too early to be doing exercises on a Saturday. Chef went back to his room. At 7am, Chef was out in the hallway doing exercises again. I told Chef he needed to wait until I was up before starting his day. Chef said, "OK" and returned to his room. I was up around 9, but there was no sound from Chef's room until just after 11am, at which point there was banging. When I knocked on his bedroom door, there was no answer. My second knock was met with a loud banging in Chef's room. I opened the door to see Chef sitting on his floor wearing just a shirt and banging his heel against the floor with an angry look on his face. I told him he needed to use his tools and behave appropriately or take himself outside. He looked down at his feet and banged again. I told him to take it outside. Chef stood up, put on a pair of pants and socks, walked down the stairs, put on his outerwear, went outside, then immediately started yelling that he was cold. I opened the door and told him this was his one reminder to work off his anger and then he could come in, that doing something physical would warm him up, and that the sooner he shows he's being appropriate, the sooner he'd be inside. Chef continued to yell and make "foghorn" sounds. He continued yelling and "foghorning" for awhile, then started picking up snow and throwing it at the house. A few minutes later, he started throwing small balls of hard snow at the door, then the window, then would quietly look for large chunks of hard snow and/or ice and hurl them at the window. I wasn't too concerned at that point because he was far enough away that it wasn't making an impact and I figured he'd quickly tire of the physical energy required. Wrong. He was shortly seeking out large chunks of the hard stuff and coming closer to the house to hurl them at the window and at the neighbours' window. I called the police and explained the situation, and that my son needed the message from them that this was not appropriate. I had the blinds closed at a certain angle that allowed me to see out if I stood in a certain place. Chef would scan the living room window, then step back and look up at my bedroom window and hurl snow then look at the living room window again or at the neighbours' house. I saw that after my son would throw at the neighbours' window, he'd then grin and laugh as he turned to pick up more snow. When he'd throw at our window, he'd yell and "foghorn." I called the neighbour to let them know that the police were on their way. When the police arrived, my son told them that he was angry because he knew he had to do exercises. Needless to say, I informed the officers that he usually does an exercise program on his own every morning and that I hadn't allowed him to exercise as early as he'd wanted that morning. I also mentioned Chef's "do anything to get out of chores at all cost" way of thinking and the steps that needed to happen before Chef could come back into the house. I also informed the officers that Chef's usually employed the yelling of, "I'm hungry!" when tantrumming outside if he has tantrummed through a mealtime and missed his meal. The officers were very clear with Chef about the importance of listening to his Mom, and directed him to start doing some physical exercise. They also informed him that if he'd broken either of the windows, they'd be cuffing him and taking him to the youth detention center where he'd have to stay in a tiny room by himself and would only be allowed out for meals and a short break each day. (Unfortunately, that information has never been much of a deterrent for Chef, even when his mental health worker talked with him about it when he was around 8 or so. Chef has stated in the past that he'd like to be able to just sit and do nothing all day.) I informed the officers that the last time I'd called in officers, Chef had started up again as soon as they'd left and that Chef needed to know that we were all on the same page about what would then happen. The officers talked with Chef more about being appropriate and stated that they would be returning to deal with him again if he continued once they left. They stayed and talked with me a few minutes while Chef got into a jumping jacks groove and seemed to be turning things around. I thanked them, they left, Chef continued exercising, and a friend of mine came over to hang out in the house for awhile so Chef would be more willing to get his chores done. Chef came in appropriately and started cleaning up the kitchen appropriately. Then began a few "games" here and there; flitzing dirt from the kitchen doormat out into the living room, removing his dirty sock from his foot to use as a rag because he'd gotten rid of the rags so he wouldn't have to do chores, pretending to be cleaning the bathroom upstairs while we were downstairs but instead going into my bedroom, which I had mistakenly left unlocked, and removing items then hiding them in the bathroom for later retrieval, etc. Chef lied about being in my bedroom and made an angry face. Back outside to deal, but this time he immediately did some exercises. When I asked him if he was ready to come inside and be appropriate and honest, he asked if my friend was still there. I asked him again if he was ready to come inside and be appropriate and honest. He angrily asked if my friend was still there. I closed the door. Chef turned to face the house, pulled his toque over his head, and started foghorning while jumping - then started losing his balance, stopped, put his hat on properly, turned around, and did jumping jacks. A few minutes later, Chef was honest about what items he'd taken from my room and where he'd put them, and started dishes. He finished dishes just before 6pm, had supper, and went to his room. Chores finshed so far this weekend: dishes. Sort of. I still need to weed out the ones that received the "dip,dip,dry" treatment. Chores started: floors.